Ménière's Disease, Hearing Loss + Missed Communication

This Is Not What I Ordered: conversations on chronic illness, loss + change

This week, join me for a co-hosted episode alongside returning guest, Melissa Platt. She is a clinical psychologist who specializes in working with survivors of complex trauma, and since she last joined me, has received a Ménière's disease diagnosis. In our candid conversation, we explore the complexities of living with progressive health challenges, the impact on one's identity, and the vital role of open and honest communication. Melissa's personal journey serves as a poignant backdrop for us to understand the intricate landscape of life with a chronic health condition, and together, we share insights, laughter, and a reminder that authentic connections and understanding can profoundly influence this journey.

Examining the crucial themes of connection and communication within the context of chronic illness, we also shine a light on Melissa’s experiences with Ménière's disease and how she's adapting to progressive hearing loss, as well as my experiences with multiple sclerosis and personal identity. Throughout our conversation, we emphasize the importance of genuine support networks, and share amusing anecdotes that illustrate both the humor and hurdles encountered along our respective health journeys. As you will hear, our dialogue showcases how language, resilience, and accompaniment can make a powerful difference when navigating life with chronic health conditions.

Episode Highlights:

• Melissa's Ménière's disease diagnosis and her journey with progressive health challenges

• The vital importance of being heard, both literally and emotionally, in our relationships

• Navigating the complexities of identity and self-awareness amidst health challenges

• Coping with the uncertainties surrounding future health outcomes

• The value of compassion and empathy when facing adversity

• Amusing miscommunication anecdotes highlighting communication hurdles

• The transformative power of non-verbal communication and meaningful connection

Quotes:

"I knew this hearing loss was going to happen, and that's why I've been taking steps to stay in communication, to stay in connection, no matter what."

"It's not forever, even though my current self doesn't believe that."

"When living a life with any kind of chronic health challenges, communication feels so important to find other human beings who you feel heard by."

"I think those are two spins on the concept of being heard. One is literal and the other is more of an emotional feeling of being known and witnessed."

“I was like, ‘I need to find my people.’"

"The power of language in shaping self-perception and self-esteem is truly remarkable."

"True connections are formed based on emotional resonance."

"Don't give up because there's probably someone feeling the exact same way somewhere."

“Everybody deserves to have people they can text and say, “Guess what just happened?” Or have a deep conversation with, or just sit with and not have to talk and just be around each other - whatever it is that you desire. I think you get to choose your people.”

Links:

This Is Not What I Ordered

Lauren Selfridge

Melissa Platt