Louise Grant

The Patient Voice Podcast

Louise is the mother of Isabelle, a 3-year old who lives with a rare condition called Severe Combined Immune Deficiency ("SCID" or the "Bubble Baby condition"). SCID babies are born without a functioning immune system and cannot fight off even the simplest viruses or infections. After Isabelle survived her life-saving Stem Cell Transplant at 7 months old, Louise went on to join the campaign to successfully advocate for SCID to be added to Australia’s Newborn Bloodspot Screening Panel. SCID is now detected, diagnosed and treated soon after birth in Australia - before a baby becomes critically ill or passes away. Louise also sits on the Board of the Immune Deficiencies Foundation of Australia (IDFA), supports other families who have a child born with SCID and is an advocate and peer mentor to families living with any Immune Deficiencies.
Immune Deficiencies Foundation of Australia (IDFA) Website https://www.idfa.org.au/
IDFA Facebook https://www.facebook.com/ImmuneDeficiencyFoundationAustralia/
IDFA Instagram https://www.instagram.com/theidfa/

IDFA LinkedIn https://www.linkedin.com/company/the-immune-deficiencies-foundation-of-australia/
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Produced by The Podcast Boss