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Parenting tools and life hacks for raising a child with a rare diagnosis. Let’s get to the meat of it!
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Imagine the excitement of becoming a new parent and then within hours finding out your child has a serious developmental disorder. That is exactly where Sanath Kumar Ramesh found himself in the summer of 2018. One year later, on his son’s first birthday, they found out that their son, Raghav, had an extremely rare mutation of the GPX4 gene. At the time, doctors told them that Raghav may be the only one on the planet with this genetic variant who had lived beyond one month of life. The progno ...
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I'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world. Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because ea ...
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Presented by the Williams Syndrome Association, the Starry Eyed Podcast will explore the joys and challenges of living with Williams syndrome, a rare genetic disability. Each episode will feature interviews with adults with WS and professionals and caregivers who are dedicated to raising awareness and resources.
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You want the best possible quality of life for your child regardless of diagnosis or prognosis. Raising a child with medical complexities is often lonely, scary and overwhelming. Join two parents of amazing children with rare medical complexities, Emily K. Whiting and Ashlyn Thompson, to get help and grow with them into empowered advocates for our kids. Here you’ll find a community of support, encouragement, education and resources, equipping you to navigate your child’s medical complexities ...
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Join hosts Shiv Gaglani, Hillary Acer, Lindsey Smith, Caleb Furnas and Michael Carrese for an ongoing exploration of how to improve health and healthcare with prominent figures and pioneers in healthcare innovation such as Chelsea Clinton, Mark Cuban, Dr. Ashish Jha, Dr. Eric Topol, Dr. Vivian Lee and Sal Khan as well as senior leaders at organizations such as the CDC, National Institutes of Health, Johns Hopkins University, WHO, Harvard University, NYU Langone and many others.
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RARECast is a Global Genes podcast hosted by award-winning journalist Daniel Levine. It focuses on the intersection of rare disease with business, science, and policy.
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A podcast for parents and families of people living with rare diseases in Ontario. I Care for Rare is a social advocacy campaign, designed to give individuals, families and caregivers living with rare diseases a collective voice for system healthcare AND community support reform.
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CRPS/RSD continues to be ranked higher than any other pain condition known to man, including childbirth and amputation, on the McGill Pain Scale! This poorly understood disease is so brutal it has earned the nickname ”The Suicide Disease”! Awareness is so important in the battle against this invisible illness! CRPS/RSD may be rare, but it is 100% REAL! You don’t have to see it to believe it! CRPS Warriors Foundation is dedicated to raising awareness and proving the undeniable legitimacy of t ...
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Primary sclerosing cholangitis (PSC) is a rare disease that affects the bile ducts inside and outside of the liver. There is no cure, and no treatments exist to slow the progression of PSC. This podcast, moderated by Niall McKay, explores the latest research and knowledge about PSC: from patient stories, to the latest research updates from PSC experts, to collaborations that are necessary to find better treatments and a cure, this podcast has it all! PSC Partners Seeking a Cure is a nonprofi ...
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A rare disease mom on a mission sharing life’s chaos. In hopes to inspire others going through a tough time.
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High above the circus of mainstream media spin, death-defying talk without the safety net of corporate influence… this is HIGH WIRE.
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This podcast is all about testicular cancer--the survivors, medical researchers, stories from caregivers, those who didn't make it, awareness advocates, and much more. It covers the whole subject with compelling stories about this cancer--which, though rare in general, is the number one cancer hitting young men. "Don't Give Up" fighting this wildfire-like form of cancer, because great strides have been made and with more awareness and effort, we can BEAT testicular cancer for good.
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92.3 The Fan, Cleveland
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This podcast is a "best of" lineup of the top posts on strugglingtothrive.com. All material except the introduction is also available on our website in written format.
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★ #1 Apple Podcast for Protestants & Catholics! ★ Life is full of stressors, uncertainty, and risk. So is following Jesus. During hard times, many believers curl up in fetal position and quit. But courageous Christians get better. We thrive when exposed to shocks and pressure because we understand the SECRET: strength is perfected in weakness. We benefit and grow in the worst of times, building durability and perseverance. If you find yourself grappling with the challenges of your spiritual ...
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“Speak Up – Kōrerotia” – a radio show centred on human rights issues. Encouraging discussion on human rights issues prevalent in both Canterbury and New Zealand, Speak Up – Kōrerotia offers a forum to promote the issues facing New Zealanders, providing a voice to affected communities. Engaging in conversations around human rights issues in our country, each show covers a different human rights issue with guests from or working with the affected communities. Analysing and asking questions of ...
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Disclaimer: Opinions shared in this podcast may not reflect the opinions of Catalyst Pharmaceuticals, Inc. Let’s talk about rare diseases. The LEMS Aware Podcast lets you hear directly from people in the Lambert-Eaton myasthenic syndrome (LEMS) and other rare disease communities on topics that matter. We talk with patients and caregivers who want to share more than their story – they want to ignite conversations about LEMS and common rare disease experiences and needs. Join us as we talk abo ...
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Seth Godin is a thought leader in the marketing and business world. In this rare live recording, hear Seth as he guides thirty entrepreneurs through a workshop exploring how they can build and run their dream business.
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In the world of news, headlines are essential, but providing in-depth analysis of news and current affairs became rare. We analyze the news and simplify complex geopolitical realities of the Middle East and wider Muslim world. To help you make sense of it all, join our host Sami Zeidan.
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The Village Global podcast takes you inside the world of venture capital and technology, featuring enlightening interviews with entrepreneurs, investors and tech industry leaders. Learn more at www.villageglobal.vc.
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Radio Prague International - Topic «Politics»
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I’m just doing this podcast so people talk to me and I don’t become a domestic terrorist. It really doesn’t have a subject or through-line. It’s just chaotic rambling. Justin IG: thejustintimee
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Lori Rohlinger is a former pastor's wife who has endured losing her husband to a rare disease but still remains positive that God has a plan for her widowed life. In her podcast, Lori shares her real life experiences from grief to joy and all the in-between. She is a single parent raising four children and learning what it looks like to move forward without the love of her life. Lori loves to share how good and faithful God has been to her, even in the midst of her Beautifully Broken life.
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Welcome to the Proactive podcast channel – the destination for breaking news on growth companies and up to the minute market coverage. Here we plug you into what’s new and exciting in the world of business.
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A fresh and intelligent start to your day - catch the very latest international and domestic news developments, sport, entertainment and business on Early Edition with Ryan Bridge, on Newstalk ZB.
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Holy Yes Podcast is the home for creative, faith-based entrepreneurs raising a hand to deepen their relationship with God, blaze forward in their wealth identity, and build a legacy of impact. Hosted by wealth activator, business wizard, creative director, Victoria Washington brings forward The Holy Yes Podcast. She’s the Founder of The House of Wealth Embodiment®, a global community and brand that has rapidly become the go-to space for entrepreneurs to develop their wealth identity, deepen ...
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At Factor Care RX, their commitment to individuals with hemophilia is deeply rooted in empathy and understanding. They recognize the unique challenges and obstacles that come with managing this complex condition and approach each interaction with care and compassion. Whether it's assisting with medication access, navigating insurance complexities, or simply providing a listening ear, Factor Care RX is there every step of the way.
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André and Velrita are doing this podcast, to raise awareness of the realities of being a carer for a loved one and living with a rare misunderstood chronic condition. Who knew that becoming a mother for the first time, twenty-seven years ago would be one of the best experiences of her life? no matter how rewarding it was, she knew it would not be easy especially as a single mother. So, imagine one day, when your child is only four years and has a stroke. Without any warning, overnight both o ...
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Mrs Moneypenny, beloved Financial Times columnist, and her editor interview the world's most successful people in business, media, arts, entertainment, finance, academia and politics. Like Sir David Attenborough, the intrepid duo ventures to their subjects’ natural habitat. In their quest to figure out how this rare species of homo erectus lives and works they corner plutocrats at Davos parties and hitch a ride with America’s most famous living feminist. Fielding irreverent questions about s ...
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Twenty Something Conversations unearths and explores the trials, tribulations and triumphs of people in their twenties.
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A place we talk about a vast array of raw and real topics concerned with the Muslim woman's experience. From intricacies of identity, marriage and motherhood, to the vast ocean of discussion on mental health and relationships, we aim to delve into it all! Instagram: @hiddenukht_ Email: yourstrulyhiddenukht@gmail.com
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Boosting Rare Disease Research Through Sports: Rob Long, Executive Director at Uplifting Athletes
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In 2010, our guest, Rob Long, was on the cusp of an NFL career after being a star punter at Syracuse University. But that bright future was sidelined when Rob was diagnosed with a rare and aggressive brain tumor just five days after his final college game. Fortunately, emergency surgery and treatment gave him a second chance. As you’ll learn in thi…
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Provaris Energy Ltd (ASX: PV1) managing director and CEO Martin Carolan sits down with Proactive’s Jonathan Jackson to discuss a tri-party Memorandum of Understanding (MOU) with Norwegian Hydrogen AS and Uniper for the supply of hydrogen to Germany. The MOU aims to develop hydrogen supply chains from Norway and other Nordic locations to northwest E…
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Lithium Australia Ltd (ASX: LIT) managing director and CEO Simon Linge joins Jonathan Jackson in the Proactive studio to discuss an agreement with Core Lithium Ltd. (ASX: CXO) to sell its remaining 7.6 million shares in Charger Metals NL and its 30% interest in the Bynoe Lithium Project.Under the agreement, Lithium Australia will receive 0.8 Core L…
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Sarytogan Graphite Ltd (ASX: SGA) managing director Sean Gregory joins Proactive’s Tylah Tully to discuss the 20-tonne trial mining exercise it will start this week at the Central Graphite Zone (CGZ) of its namesake project in Kazakhstan.The purpose of this exercise is to collect ore for vendor testing and to generate customer samples. The bulk sam…
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Gavin Grey: Europe correspondent on Venezuelan opposition leader Edmundo Gonzales' arrival in Spain after disputing its elections
3:27
Venezuelan opposition leader Edmundo Gonzales has arrived in Spain after fleeing the country after its presidential election. Gonzales had an arrest warrant issued after he disputed July’s election, which was won by incumbent Nicolas Maduro. The US, EU and Latin American countries have also questioned the election results after Venezuela refused to…
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Andrew Alderson: Paralympics 2024 - Peter Cowan paddles to va’a VL3 200m bronze medal in Paris
3:25
There was a high level of suspense when Peter Cowan crossed the finish line in the final of the men’s single va’a VL3 200m canoe sprint race in Paris. In his Paralympic Games debut, the 29-year-old from Hawke’s Bay flew out of the blocks in the final to battle for the early lead. As the contest went on, it looked to be a case of two races for medal…
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Ryan Bridge: If you're not responsible or capable of saying no to a gang life, how can you be punished for it?
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Interesting op-ed from The Conversation by Chris Gledhill, Professor of Law at Auckland University of Technology. It's about the Government's new gang legislation and argues that the changes that are being made in some last-minute ones could impinge on the Bill of Rights, and it makes some good points. It says people join gangs for various reasons …
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Weston Kirton: Ruapehu District Mayor calling for Government to step in and save two mills facing closure due to rising energy costs
4:06
The Mayor of the Ruapehu District wants the Government to step in to save two businesses facing closure. Hundreds of jobs are on the line - with the Kariori pulpmill and Tangiwai sawmill both under pressure, as energy costs have gone up significantly in recent years. A meeting on the fate of hundreds of workers is expected tomorrow. Ruapehu Distric…
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John Munro: Criminal defence lawyer says it's very rare to see public caught in the crossfire of a homicide
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A criminal defence lawyer says it's very rare to see the public caught in the crossfire of a homicide. Since the start of August, Police have launched 11 homicide investigations around the country. One has since been deemed not a homicide and has been referred to the coroner. Lawyer John Munro told Ryan Bridge Police may be stretched. “The promisin…
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Listen to the Early Edition with Ryan Bridge Full Show Podcast for Monday 9 September. Get the Early Edition with Ryan Bridge Full Show Podcast every weekday morning on iHeartRadio, or wherever you get your podcasts. See omnystudio.com/listener for privacy information.Por Newstalk ZB
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Por The Highwire with Del Bigtree
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501 - John's Insane Story of Being Raised In Violence, Feeling Condemned to Hell, and How No One Is Too Far Gone For God | John Pridmore
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International Speaker and Author, John Pridmore joins Joseph to talk about being raised in violence, feeling condemned to hell, and how no one is too far gone for God. GUEST LINKS JohnPridmore.com SUBSCRIBE BrokenCatholic.com Music By: StantonLanier.com | Purple-Planet.comPor Top Catholic Podcast Host Joseph Warren
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Facebook CEO, Mark Zuckerburg, finally addressed the censorship the social media giant engaged in through an open letter to House Representative Jim Jordan this week, outlining the pressure he received from the Biden White House and the media to remove COVID-19 and Hunter Biden laptop posts. Many are questioning why he is coming clean and apologizi…
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Best of the Browns on 92.3 The Fan: Week 1 vs. Cowboys
1:24:57
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Browns beat reporter Daryl Ruiter gives his prediction for the season. Also, Mary Kay Cabot previews Week 1, Andrew Siciliano on becoming the team's new radio voice and CB Greg Newsome III on playing the Cowboys.
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Episode 388: SIRI TESTIFIES: NEW HAMPSHIRE “POST-LICENSURE SAFETY”
2:09:03
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The third installment of attorney Aaron Siri’s expert testimony before the New Hampshire House Committee on COVID Response Efficacy. In this episode, ICAN’s lead attorney exposes the shortcomings of post-licensure safety, and shatters the claim that the connection between vaccines and autism has been ‘thoroughly studied.’ Guest: Aaron Siri, Esq.…
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Full Show - September 6th 2024
1:48:40
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The entirety of Baskin & Phelps for September 6, 2024.
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Andy Baskin and Jeff Phelps kick off the end of the week discussing last night’s TNF game and what could have been, After that they dive into David Bell being cut by the Browns just days before week one.
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Andy and Jeff break down the Browns defense by position and give their thoughts on the unit before week one against the Cowboys. Then, as a the Guardians prepare to play the Dodgers tonight, why don't we hate them like we hate the Yankees?
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Anthony Castrovince of MLB.com joins Andy and Jeff to discuss the current state of the Guardians ahead of a series with the Dodgers. Some of his comments get Jeff worried. Then, Tim May of Letterman Row joins the show to talk Buckeyes Football.
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Andy and Jeff take a preview of week one and give their thoughts on how the game plays out. Some major storylines surrounding the Dallas Cowboys, as well.
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Andy and Jeff welcome in Tim May of Letterman Row, to discuss Ohio State's first week win over Akron and their upcoming game with Western Michigan. Will Howard's performance, Jeremiah Smith, and more.
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Petro-Victory Energy Corp Achieves Major Milestone at São João as CEO updates on Future Growth Plans
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Petro-Victory Energy Corp CEO Richard Gonzalez joined Steve Darling from Proactive to provide an operational update on the company's progress. Gonzalez revealed that the company successfully completed its three-well workover program at the São João Field, achieving total oil sales volumes of 5,814 barrels (bbls) for Q2 2024—representing a 99% incre…
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After talking to Anthony Castrovince, Jeff has some of his own concerns for the bullpen arms. Could there be real problems for these guys down the road.
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Anthony Castrovince of MLB.com joins the show to talk about the Guardians upcoming matchup with the Los Angeles Dodgers. The performance of Matthew Boyd and the starting rotation, Lane Thomas' turnaround and more.
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Hive Digital Technologies CEO Aydin Kilic Shares August Bitcoin Production and Expansion Plans
5:00
Hive Digital Technologies CEO Aydin Kilic joined Steve Darling from Proactive to announce the company’s unaudited August production results. Hive successfully mined 112 Bitcoin, increasing its total Bitcoin holdings by 1%, bringing the total balance to 2,567 BTC. In addition, the company acquired 1,000 Bitmain S21 Pro Antminers, aiming to enhance i…
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Andy and Jeff change the conversation to baseball. With a series against the Dodgers coming up tonight, the guys try to find out why they don't get the same hate as the Yankees.
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ECD Auto Design Launches Beach Runner 3, Partners with Blackbridge Motors, sees strong Q2 Growth
7:46
ECD Auto Design CEO Scott Wallace shared exciting updates with Steve Darling from Proactive, including the launch of the company's latest vehicle, The Beach Runner 3. This new addition to the Beach Runner series is designed to blend the ruggedness of a classic Land Rover with the style and customization suited for coastal adventures. Notably, the B…
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Andy and Jeff continue to breakdown the defense and get more into the secondary. The strengths and weaknesses and early feelings on the unit.
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After doing their offensive breakdown yesterday, Andy and Jeff take on the defense today. The guys break down the position groups and give their thoughts on how they feel going into week one.
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Four counties in Massachusetts have initiated a voluntary curfew to mitigate a rare mosquito-borne illness known as EEE. Officials have resorted to widespread spraying of pesticides with known harmful effects on humans. But, locals are pushing back.Por The Highwire with Del Bigtree
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Andy and Jeff discuss the interesting decision to cut David Bell just three days before week one. The potential reasoning and Andrew Berry's third round struggles.
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Andy Baskin and Jeff Phelps take a look at last night's TNF matchup and give their thoughts on the final play and more.
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Nova Minerals Ltd (ASX:NVA, OTCQB:NVAAF) CEO Christopher Gerteisen joins Proactive’s Tylah Tully to discuss the bulk testing of antimony-rich stibnite material at its Estelle Project in a gold and critical minerals rich district of Alaska.This move is part of Nova’s strategy to prepare for near-term antimony production, particularly in response to …
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Will this week bring redemption for the All Blacks? Last week saw them lose to South Africa, the Springboks taking the win at Ellis Park. This Sunday will see them facing off again in Cape Town, and Coach Scott Robertson has made a few changes to the lineup in preparation. Former Springbok and Rugby Commentator Kevin Putt joined Ryan Bridge to prev…
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Maria Pozza: International Space Expert on New Zealand joining the multi-national space initiative Operation Olympic Defender
5:16
There are hopes New Zealand can help lead the effort to clean up space. Space Minister Judith Collins has announced we've joined a US-led multi-national space initiative: Operation Olympic Defender. International space expert Maria Pozza told Ryan Bridge that as well as defence, it will see New Zealand contribute to reducing space debris. She says …
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Vincent McAviney: Europe Correspondent on Michel Barnier being named as the new French Prime Minister
2:54
France has a new Prime Minister, ending the country's months long political limbo. President Emmanuel Macron has named conservative Michel Barnier as the new Prime Minister. It comes two months after a snap election ended with a political stalemate. Europe Correspondent Vincent McAviney told Ryan Bridge that Barnier was the EU's former chief Brexit…
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Julien Leys: Building Industry Federation CEO on the new legislation around importing building supplies from overseas
3:07
The Government's making changes aimed at bringing down the cost of building homes. It's introduced new legislation to make it easier to import building supplies from abroad. It'll enable recognition of overseas standards and Building Consent Authorities will need to accept products already certified offshore. Building Industry Federation Chief Exec…
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From 'It's Always Gameday in Cleveland' (subscribe here): Andy Baskin and Daryl Ruiter discuss the injury statuses for multiple key Browns players as they head into their Week 1 matchup against the Dallas Cowboys
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On the Early Edition with Ryan Bridge Full Show Podcast for Friday 6th of August, overseas building supplies could soon be introduced to the market to help lower building costs. Building Industry Federation Chief Executive Julien Leys speaks to Ryan about what it means. New Zealand has joined the multinational space programme Operation Olympic Defe…
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Aclara Resources Chief Operating Officer Barry Murphy joined Steve Darling from Proactive to announce significant developments surrounding the company's Carina Module, a regolith-hosted ion adsorption clay project in Goiás, Brazil. A recently released preliminary economic analysis reveals an after-tax Net Present Value (NPV) of $1.5 billion, using …
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Reklaim CEO Discusses Data Empowerment and AI-Driven Innovations in the $700 Billion Data Market
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Reklaim CEO Neil Sweeney joined Steve Darling from Proactive about the company’s approach to data ownership and privacy. Sweeney emphasized how the company empowers consumers by giving them control over their personal data, allowing them to reclaim and monetize it in the booming $700 billion data market.Sweeney also introduced Reklaim’s latest inno…
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Full Show - September 5th, 2024
1:46:50
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The entirety of Baskin & Phelps for September 5th, 2024.
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Hour 1: What are you expecting out of the Browns offense this season? + Who is the key player on offense for the Browns to succeed?
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Baskin & Phelps break down the Browns roster on offense ahead of their season opener on Sunday against the Cowboys.
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Hour 2: Nick Kostos + Do Travis Kelce and Taylor Swift have a scheduled breakup? + Daryl Ruiter
35:24
Baskin & Phelps are joined by Nick Kostos, Audacy Sports Betting Insider, to discuss the start of the NFL season. Then, they talk about rumors surrounding Travis Kelce and Taylor Swift, and they’re joined by Daryl Ruiter.
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Hour 3: Andrew Siciliano + What are you hoping to see out of the Guardians series against the Dodgers? + Has the WNBA mishandled Caitlin Clark?
37:39
Baskin & Phelps are joined by Andrew Siciliano, the new play-by-play announcer on the Browns Radio Network. Then, they transitioned to talking about the Guardians-Dodgers series, and Caitlin Clark with the WNBA.
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Hour 4: Teams to look out for in the 2024 NFL season + Comments from Browns offensive coordinator Ken Dorsey
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Baskin & Phelps discuss teams that could surprise people this season, and they react to Ken Dorsey’s comments before practice in Berea.
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