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Sure, it’s good to be flexible in life, but all things have their limits! If you’ve ever lived with a connective tissue disorder, you know all too well how often joint conditions like Ehlers-Danlos Syndrome (EDS) can go unrecognized by doctors and result in life-altering symptoms from pain and fatigue to gastrointestinal issues and insomnia. Whether you’re living with a hypermobility condition, treating one, or know someone living with their own – the greatest secret weapon you can use to ma ...
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Join on us on our individual journeys living, coping, and laughing at our lives with Ehlers Danlos Syndrome or EDS. We intend to raise awareness about invisible Illnesses, commiserate with fellow chronic disease friends, and share our own coping strategies and advice we have accumulated on our respective journeys
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Hypermobility Happy Hour is the first podcast exclusively dedicated to discussing hypermobility conditions including hypermobile Ehlers-Danlos Syndrome. Guests on the Hypermobility Happy Hour have included world renowned physicians, patient advocates, researchers, and individuals living with hypermobility. Listen in as we examine a wide range of topics, including treatment options for hypermobility disorders and ways to improve the doctor-patient relationship. The information provided on thi ...
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Sharing positive stories of recovery after a herniated disc or other spinal cord injury. Join herniated disc champion CK as she has informative and encouraging conversations with other back injury survivors. From people who elected to have back surgery (microdiscectomy, laminectomy, fusion, etc) to those who used more conservative methods, plus all things in between, join our podcast, and let's talk about how life can move beyond the bed after injury. If you are dealing with the isolation an ...
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The Chronically Courageous, where chronic illness warriors come to feel empowered and uplifted. Listen each week to be inspired by others who have found happiness and peace, despite the physical and emotional tolls of chronic illness. Together, we navigate this complex journey and move forward with courage, passion, and purpose! Hosted on Acast. See acast.com/privacy for more information.
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If you want the "in" on your health, search no further. Fit As a Fiddle brings you top tips from experts in many fields of health and wellness. Grow with our community as you learn how to enhance your overall physical and mental wellbeing.
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An interactive podcast to help entrepreneurs grow their businesses by unleashing their natural resilience. Since I’ll be broadcasting these episodes live using the BLAB network. Viewers will be able to post questions during the show. This is a very exciting venture and I hope that you’ll join us. Brian R. King, LCSW is a 27 yr cancer survivor, adult with ADHD & Dyslexia as well as the father of three sons with Asperger's and ADHD. In addition, Brian suffers from Ehlers-Danlos Syndrome Type 3 ...
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Welcome to Finding Your Range, the Podcast which uncovers the truth behind living with hypermobility, Ehlers-Danlos Syndrome and chronic pain. Your host is Jeannie Di Bon, a movement therapist who specialises in working with clients with these conditions. She is also the author of two books - Pilates Without Tears and Hypermobility Without Tears. She is an educator of teachers and therapists in the field of movement for hypermobile patients and speaks regularly for The EDS Society and the HM ...
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The Spoonie Struggle is about the raw, honest look at living life with chronic illnesses and chronic pain conditions. Spoonies of all types are welcome to join us, but we will have a heavier focus on the lesser common, lesser understood, and difficult to diagnose conditions, such as Ehlers Danlos, Marfan’s, Ankylosing spondylitis, Sjogren’s syndrome, lupus, multiple sclerosis, sickle cell anemia, and endometriosis. In this show, we will discuss our own experiences of each aspect of life with ...
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PodcastDX

PodcastDX

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PodcastDX is an interview based weekly series. Guests share experience based medical insight for our global audience. We have found that many people are looking for a platform, a way to share their voice and the story that their health journey has created. Each one is unique since even with the same diagnosis, symptoms and the way each person will react to a diagnosis, is different. Sharing what they have experienced and overcome is a powerful way our guests can teach others with similar ail ...
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Sensory Matters is a weekly podcast featuring expert interviews from the world of Sensory Seeking, Stimming & Autism. Supporting the World‘s Number 1 community of Sensory Seekers at sensooli.com this show is all about helping sensory seekers, avoiders carers and professionals with useful, interesting and inspiring stories. Find out more at, sensooli.com
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Genetics isn’t always black and white. And the emotions and decisions surrounding genetic testing can be even more complex. Hosted by genetic counselor Eleanor Griffith, the show brings you the personal experiences of patients and genetic counselors.
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Me and little Bear talk about all different sorts of disabilities and the challenges that come with. Sometimes we have a random friend join our podcast and talk with us. After (almost) every intro we do Guess That Symptom which is a game you guys can play along with. To send us a voice message please use this link https://anchor.fm/rachel-runnalls/message to find my Facebook page go to https://www.facebook.com/atypicalperson.podcast/
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Rights Upfront

Chandy & Rights Upfront

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Welcome to the Rights Upfront Podcast, where every story finds a voice. Join us as we delve into the world of disability rights and inclusion, amplifying diverse voices and advocating for change. From personal experiences to expert insights, each episode explores the challenges, triumphs, and ongoing efforts to promote equality and accessibility for all. Whether you're passionate about disability rights or simply curious to learn more, tune in to be inspired, informed, and empowered. Join th ...
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Living with a chronic illness can be an incredibly isolating experience. It can feel as though you're navigating life -- your illness itself, your experience with the medical system, communicating with your job and with loved ones -- completely by yourself. In this podcast, Katie, a coach who works with people living with chronic illness and who lives with a chronic illness herself, talks to people about their illnesses & conditions, their experiences, and their lives. The purpose is to shar ...
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A podcast that features interviews with inspirational guests who: - Have overcome adversity and turned their challenges into triumphs AND/OR - Are making a positive difference in the world Once a fortnight, you will hear the inspiring story of a guest who has experienced a challenging time in their life. As a result of these challenges, these guests have chosen to learn, grow and better themselves. Their stories showcase resilience, strength and the ability to thrive following adversity. Wit ...
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RX Physiotherapy

April Patterson & Brendan Casey

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Welcome to the Rx Physiotherapy Podcast – your ultimate destination for expert insights on physio, rehab, health, and wellness. Join hosts April Patterson and Brendan Casey, seasoned physiotherapists as they dive deep into captivating topics each week, covering everything from physiotherapy essentials to nutritional secrets. Dr. April Patterson, founder of RX Physiotherapy, holds a Doctor of Physiotherapy degree from Bond University. Her personal experiences with conditions like Ehlers-Danlo ...
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The Blonde & The Bald

Drs. Elizabeth Bagley & Frederick T Schurger

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Are you experiencing back pain that you can’t get rid of? Getting migraines and/or having trouble sleeping with no identifiable cause? Do you feel like you’ve tried everything out there to treat these aches and pains but have little to no improvement? Chiropractic treatment might be the solution you’ve been looking for. There is hope yet! Get expert guidance from Blair chiropractors, The Blonde and The Bald, Drs. Beth Bagley & Frederick Schurger. On this show, they explain how chiropractic c ...
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Dear Friends And Family

Dear Friends And Family

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Dear Friends & Family is a show about living a full life with chronic illness with your hosts Patty & Lex. Patty lives with Fibromyalgia & Lex lives with Small Fiber Neuropathy. Together they explore the topics of life, love, and happiness with other people living a life involving illness. This show is to remind anyone dealing with illness in their day to day lives, whether they are the caretaker or the person with illness, that they are not alone. It's a serious topic with an upbeat feel. P ...
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Dr. Schurger and Dr. Bagley discuss Ehlers-Danlos Syndrome (EDS), a loose ligament syndrome that prevents proper collagen formation in joints and soft tissues. If you or someone you know has joints that pop and frequently feel out of place, it could be a sign of EDS. There is help available. Join us as we explore how we've been helping EDS cases an…
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Ehlers-Danlos Syndrome (EDS) is a multifactorial condition that can affect people across ages and genders. It can be very difficult to diagnose as some types of EDS are very rare and symptoms can be vague or be confused with other diseases. Pelvic floor dysfunction (PFD) is also a condition that can be difficult to diagnose for so many reasons. Bot…
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Your nervous system has an automatic operating system that you don't think about day or day out. But it is working every day to make sure all of your body is coordinated properly including your rest your digestion you're a bit ability to wake up in the morning and if presented with a sabertooth tiger your ability to run away as fast as possible. Th…
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With advances in AI and robotics, neurosurgery has become an important field to begin integrating new technology for better patient care. Dr. Osama Kashlan, a Neurosurgeon at New York-Presbyterian Brooklyn Methodist Hospital joins us today for a lively chat on his recent work. On the show, he discusses the standardization of back pain and care at W…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Alan Hakim, a world-renowned rheumatologist and expert in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Dr. Hakim reveals for the first time something about his own health. Listen in to find out what Dr. Hakim really thin…
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Send us a text What happens when an athlete renowned for her energy and passion is suddenly sidelined by a crippling back injury? Join us on this episode of "Bed, Back and Beyond" as we explore the journey of Brittany, an avid volleyball player living in Philadelphia, whose life took an unexpected turn due to a severe back injury. Through her compe…
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On this week's show we are speaking once again with Kristine Hoestermann, the founder of "FindYourRare" and she will be explaining how difficult it has been to get a diagnosis for Ehlers Danlos Syndrome and where that diagnosis took her (Brittle Cornea Syndrome & the BRCA Gene for Breast Cancer are the latest two) During our discussion I mentioned …
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, welcomes Dr. Tina Wang, a leading expert in physical medicine, rehabilitation, and fascia research. Dr. Wang delves into the complexities of fascia, particularly its role in Ehlers-Danlos Syndrome (EDS) and Hypermobility Spectrum Disorders (HSD). She explains ho…
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Send us a text S301 Could you imagine facing a severe back injury that threatens not only your physical well-being but also your career? Mahesh, a software engineer from Bengaluru, India, opens up about his journey of battling three bulging discs, navigating through initial misdiagnoses, and finally finding the right path to recovery with the help …
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Your gut microbiome is like a microscopic ecosystem within your body, housing trillions of microorganisms that interact with each other and their environment in various ways. These microbes also have a significant impact on your overall health, influencing both your digestive system and other bodily functions. ​ A biome is a distinct ecosystem defi…
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Each week, join Dr. Linda Bluestein (AKA The Hypermobility MD) on her quest to demystify the wide world of symptomatic joint hypermobility. Get ready to better understand your own bendy body in our newest season – available now! Learn more about your ad choices. Visit megaphone.fm/adchoicesPor Dr. Linda Bluestein, MD
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APGAR scores, imbalanced sacrums, and a penchant for the history and philosophy of chiropractic are just the beginning of things we talk about with Dr Patrick Montgomery. He has taught at multiple chiropractic schools in his career while working in clinical practice & research. He is also Dr Bagley’s favorite professor from her time at Logan Univer…
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Endometriosis (commonly referred to as “Endo”) has a global impact on females of reproductive age. According to the World Health Organization, it affects about 10% of women and girls. What we know as doctors and practitioners who treat people who have endometriosis, is that it is extremely difficult to arrive at this diagnosis due to various variou…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, chats with Katie and Andrew Dettelbach, founders of Whealth, a program dedicated to helping people with hypermobility and chronic pain. Both Katie and Andrew have hypermobile Ehlers-Danlos Syndrome (hEDS) and have turned their personal struggles into a platform …
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This week we will discuss Sturge-Weber syndrome with a wonderful woman we had the pleasure of meeting previously in Season 8 E 20. Chelsey Peat was born with Sturge-Weber syndrome, a rare condition that led to multiple surgeries, including a life-saving brain surgery as an infant. Despite doctors predicting significant limitations, Chelsey has defi…
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The Internet will tell you that there are new names for food colorings but it's wrong. There have been new names for food colorings for many years and you may need to be armed with knowing that these are the new words for artificial food colorings. Generally considered safe, these artificial food colorings are actually petroleum products that we pu…
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“What do you mean you’re going to poke me with needles?” You might ask this question if your medical professional believes that needles might help expedite your healing and recovery process from an injury. Typically people associate needles only with acupuncture. However, other medical professions use needles in different ways for different benefit…
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In this insightful episode of the Bendy Bodies podcast, Dr. Linda Bluestein speaks with Dr. Natasha Trujillo, a licensed sports psychologist specializing in grief, loss, and chronic illness. Dr. Trujillo and Dr. Bluestien both work with the Colorado Ballet. Dr. Trujillo discusses the complex emotional landscape of grieving when faced with chronic p…
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Paris Scobie is a Mental Health Speaker, Host of the top 1% globally ranked podcast, Live Well Bipolar, & Best-Selling Author of her memoir, Crooked Illness: Lessons From Inside & Outside Hospital Walls. Paris launched Live Well Bipolar to use her lived experience to help others overcome the shame, fear and isolation that can so often accompany liv…
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Send us a text Have you ever felt trapped in a body that seemed to betray you, leaving you in constant pain and emotional turmoil? Join me, CK, as I share people's battle with herniated disc and other injuries that turned their world upside down. Discover how they navigated through the maze of fear, depression, PTSD, and the daunting decision of wh…
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You may see a news report on a mom giving birth in a taxi. You may see Emily Blunt giving birth in silence in the movie “A Quiet Place.” You’ll hear all the stories from your friends and family where either the baby just “slipped out” in a few minutes or tore their mother apart after “5 days” of pushing. Regardless of what you’ve seen or heard of t…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, sits down with Emily Rich, an occupational therapist specializing in POTS (Postural orthostatic tachycardia syndrome), Ehlers-Danlos syndromes, and other chronic conditions. Emily, who is also a patient with hypermobile EDS and POTS, shares her insights on how o…
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Today, we have the honor of speaking once again with Sheila Ames, a registered nurse in Northern California who has been diagnosed with a rare type of a primary immunodeficiency known as common variable immunodeficiency or CVID for short. How did she fare during the recent Pandemic? Tune in now to find out! At the time of her diagnosis she was work…
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What are some myths and truths about screen time and how it affects our eyes? What are good practices for wearing contact lenses and glasses? How can you optimize your eye health from a young age? These questions, and so many more, are answered in today’s episode. Joining us is Dr. Antonio Capone, an internationally recognized clinician, surgeon, a…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, engages in an enlightening conversation with Dr. Kaitlin Touza, a renowned pain psychologist. Dr. Touza delves into the complexities of chronic pain, explaining how the nervous system, brain processes, and psychological factors contribute to pain experiences. Sh…
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Ticks & Lyme Disease is the topic of the week! Our guest is Dr. Myriah Hinchey, a Naturopathic physician and Fellow of the Medical Academy of Pediatric Special Needs (MAPS), is a recognized expert in the field of Lyme disease and other complex chronic inflammatory conditions, with over 17 years of specialized experience. As a physician and the Medi…
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This week we discuss Limits (things that Chronic/invisible illnesses prevent us from doing) and Restraint (things that we restrain and limit in some ways to do things). How limits and restraint works with chronic conditions and the adjustment that we have had to make in our lives to manage our conditions to live instead of simply function. What are…
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Turning to ancient wisdom that is tried and true over centuries is one of the surest ways to help your health in the long run. Today, Nicole Kruck, one of the first practitioners of the Arvigo Techniques of Maya Abdominal Therapy, joins us today. Combining her degree in Oriental Medicine with massage therapy has helped her be one of the best holist…
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In this episode of the Bendy Bodies podcast, Dr. Linda Bluestein, the Hypermobility MD, hosts an enlightening discussion with Dr. Karen Herbst, a leading expert on lipedema and other adipose connective tissue diseases. Dr. Herbst shares her extensive knowledge on the complexities of lipedema, Dercum's disease, and their connection to connective tis…
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Squeeze a world of passion, goal driven problem solver and an adventurous triathlete into 5 feet of fun and you get Faith Louise Cooper. Faith Louise grew up in a family of 5 with 2 younger sisters. At the 12 she was diagnosed with Juvenile Rheumatoid Arthritis, now known as Juvenile Idiopathic Arthritis. In 2017 she was diagnosed with hypermobilit…
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This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studie…
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The Weekly Recap (check-up) evolved into a chaotic, mania-driven venting session. Honestly days to just meet up and complain, vent out those frustrations, are helpful little 'resets'. It's also a flashback of how the early years of the podcast ebbed and flowed conversation-wise. Thanks again, Abilify! What are your thoughts on this subject? Feel fr…
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Sometimes the best health practitioners are those that ended up in their field almost out of chance. Today Jeremy Quinby, a craniosacral therapist, chats with us on his interesting journey into integrative health. We talk about how manual therapy and movement are key to improving health and the importance of trauma-informed care. He focuses on pedi…
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In this episode, Dr. Linda Bluestein, the Hypermobility MD, delves into the intricate connections between the immune system and hypermobility disorders with Dr. Kara Wada. A quadruple board-certified physician and Sjogren's patient, Dr. Wada shares her expertise on mast cell activation syndrome, autoimmunity, and the role of inflammation. Discover …
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