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Christian Rubio Talks About Global Genes and Advocacy for Patients with Rare Diseases
Manage episode 297076284 series 2949236
Contenido proporcionado por TrialSite News. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente TrialSite News o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
400 million worldwide are impacted with rare diseases and approximately 30 million in America. With organizations like Global Genes we have come quite a ways to evangelize what amounts to very vulnerable groups. In this episode Christian Rubio talks about Global Genes and how they started, their goals, and what the future looks like, especially while dealing with COVID-19.
To find out more about Global Genes and Christian Rubio please see the links below:
Continuity of Care RARE Patient Impact Grant programRARE Drug Development Symposium RARE List Global Genes
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Manage episode 297076284 series 2949236
Contenido proporcionado por TrialSite News. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente TrialSite News o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
400 million worldwide are impacted with rare diseases and approximately 30 million in America. With organizations like Global Genes we have come quite a ways to evangelize what amounts to very vulnerable groups. In this episode Christian Rubio talks about Global Genes and how they started, their goals, and what the future looks like, especially while dealing with COVID-19.
To find out more about Global Genes and Christian Rubio please see the links below:
Continuity of Care RARE Patient Impact Grant programRARE Drug Development Symposium RARE List Global Genes
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