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#129: The Parkinson's Experience - Living Solo vs. Shared Support (Raw Emotion)
Manage episode 462716168 series 3632862
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Not everyone has a live-in carepartner. People dealing with Parkinson's could be young, old, male, female, living solo or living with someone. See how Brian manages living alone, and listen to the questions he asks me about checking in on my caregivers. This is a good one...
0:00 Intro
3:15 Living solo you do things for yourself
4:06 Living with PD, do you have stress, putting stress on your carepartner?
5:10 Are we asking or checking in our CarePartners how they are dealing with our PD?
7:24 Are you embarrassed by your symptoms in public?
8:41 Do we talk about our Parkinson's too much?
10:33 Does Parkinson's consume you?
11:57 Having an outlet - a PD community
13:03 There needs to be a PD training class - how to live with PD
15:03 Being your own CarePartner
15:54 All Parkinson's patients need a Tesla, Mr. Musk ;)
16:49 Do you think of long-term care or disability options?
18:10 Seeing the progression
20:29: Last 30 seconds
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