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Episode 31: Patient Advocate Richie Kahn
Manage episode 439894323 series 3528525
Contenido proporcionado por Shaimond Foye. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Shaimond Foye o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
In this episode of the Charles Bonnet Syndrome podcast, host Shaimond interviews Richie Kahn, a public health professional, clinical researcher, and patient advocate. Richie shares his personal journey with optic atrophy and Charles Bonnet Syndrome. With a background in public health and a passion for patient advocacy, Richie talks about his career in clinical research, his efforts to reduce inefficiencies in drug development, and his work through Canary Advisors to incorporate the patient perspective into clinical trials. Richie also discusses his coping strategies for Charles Bonnet Syndrome, the importance of laughter, running, using a white cane, and the critical need for raising awareness and education about vision loss and associated conditions.
Contact Info:
https://www.linkedin.com/in/richiekahn/
https://www.canaryadvisorsllc.com/
For help with CBS call 1-704-389-0160
Contact me at [email protected]
For a link to attend Dr. Gary Cusick’s U.S.-based weekly virtual CBS support group and CBS caregivers support group email Dr. Cusick at [email protected]
For support or resources for CBS in the UK, please visit https://www.charlesbonnetsyndrome.uk or email [email protected].
For support or resources for CBS in the U.S., please visit https://marycarmelslight.com or https://www.charlesbonnet.com or email [email protected]
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