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Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2

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Contenido proporcionado por Bo Bigelow. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Bo Bigelow o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.

Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2

What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things?

If you're a parent of a child with a rare disease, you've probably faced moments of disbelief from others—especially from those you trusted to help. This episode dives into one such experience, sharing practical insights on how to navigate this emotional and isolating journey while advocating for your child.

Learn how to recognize the signs of cortical visual impairment (CVI) and why early identification matters.

Discover strategies to manage the emotional toll of feeling dismissed or gaslit as a rare disease parent.

Gain actionable tips for building resilience and finding allies who truly listen and care.

Hit play now to hear this week's episode and equip yourself with tools to advocate for your child, even when the system feels stacked against you!

  continue reading

101 episodios

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iconCompartir
 
Manage episode 459924854 series 1054126
Contenido proporcionado por Bo Bigelow. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Bo Bigelow o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.

Seeing the Unseen: Navigating CVI and the Power of Being Heard - Part 1 of 2

What happens when a medical professional dismisses your concerns about your child’s health? How do you move forward when you're made to feel like you're imagining things?

If you're a parent of a child with a rare disease, you've probably faced moments of disbelief from others—especially from those you trusted to help. This episode dives into one such experience, sharing practical insights on how to navigate this emotional and isolating journey while advocating for your child.

Learn how to recognize the signs of cortical visual impairment (CVI) and why early identification matters.

Discover strategies to manage the emotional toll of feeling dismissed or gaslit as a rare disease parent.

Gain actionable tips for building resilience and finding allies who truly listen and care.

Hit play now to hear this week's episode and equip yourself with tools to advocate for your child, even when the system feels stacked against you!

  continue reading

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