))
Quality of Life Measures
Manage episode 312495020 series 3236617
Contenido proporcionado por David Cunnington and SCN2A Australia. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente David Cunnington and SCN2A Australia o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
Measuring quality of life is important, particularly in clinical trials, to capture the broader impacts of treatment beyond just measuring seizures.
To help understand what outcome measures are and why they are important to spoke to Dr Jenny Downs, Program Head of Disability Research at the Telethon Kids Institute in Perth.
You can listen to and subscribe to the SCN2A Insights podcast via Apple Podcasts, Spotify, and Google Podcasts or in your podcast app.
Links:
- Information on Quality of Life Inventory-Disability (QI-Disability)
- Validation study of QI-Disability
- Want to help developing quality of life measures for children with genetic epilepsy?
See omnystudio.com/listener for privacy information.
28 episodios
Compartir
