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Maria Mendoza's Story
Manage episode 362501374 series 3276234
Contenido proporcionado por Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Dwayne Golden | SCPASCC, South Central PA Sickle Cell Council, and Dwayne Golden o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
- Guest: Maria Mendoza, a parent and sickle cell disease advocate for her children and other families with SCD children.
- Maria has 2 children with SCD (Luis, 11 years old, and Andrea, 7 years old) and 1 with SCT.
- Maria stresses the importance of communicating with her children's teachers about their SCD condition and advocating for their needs.
- Lack of privacy, understanding from teachers, and potential bullying from classmates can all contribute to the loss of dignity for the child with SCD.
- Education and awareness are crucial to ensure that employers, educators, and healthcare professionals are knowledgeable about the disease and can provide necessary support.
- Sickle cell disease affects individuals from various ethnicities and backgrounds.
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