))
Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon
Manage episode 434649250 series 3485028
Contenido proporcionado por Joanna. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Joanna o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
Join me as I talk with Rebekah about her child Mason's diagnosis with HypoHidrotic Ectodermal Dysplasia. Mason is now years old and he is already advocating for his health with his mother's help. HypoHidrotic Ectodermal Dysplasia is a rare genetic condition characterized by the bodies inability to sweat, sparse hare, tooth loss and ear, nose and throat issues. Mason is missing all except 2 of his natural teeth and so he has to wear dentures to be able to eat and carry on a conversation. This condition involves a lot of therapy with both speech theraoy and therapists that specialize in feeding.
Blue Grit Podcast: The Voice of Texas Law EnforcementHost: Clint McNear and Tyler Owen discussing topics, issues, and stories within the...
Listen on: Apple Podcasts Spotify
Capíttulos
1. Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon (00:00:00)
2. [Ad] Blue Grit Podcast: The Voice of Texas Law Enforcement (00:16:54)
3. (Cont.) Hypohidrotic Ectodermal Dysplasia With Rebekah From Oregon (00:17:31)
37 episodios
Compartir
