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Duchenne Sibling Experience (Spanish Episode)
Manage episode 361737054 series 3406993
Contenido proporcionado por PTC Therapeutics. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente PTC Therapeutics o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
Welcome back to another episode of Insightful Moments: My VIBE, presented by PTC Therapeutics. Karina Lambertini, Patient Engagement Liaison at PTC, is attending the Akari Foundation workshop in Dallas, which is the foundation’s first hybrid workshop fully in Spanish for families affected by Duchenne Muscular Dystrophy. A family is one of the most solid forms of support you can have, but a family can also face many challenges as they learn to cope with a sibling being diagnosed with DMD. On today's episode Karina is speaking with siblings of those diagnosed with DMD, to hear their experience with the many emotions that come with a sibling affected by a terminal disease, including their mutual love for one another, and learning to lean on other members of the sibling community. Join us for this heartfelt episode of Insightful Moments: My VIBE, brought to you by PTC Therapeutics.
For more information, visit the Insightful Moments website at www.PTCinsightfulmoments.com.
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