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Johnathan's Glioblastoma Multiforme Story
Manage episode 412190935 series 3164719
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In this episode of Aunty M Brain Tumours Talk Show, Johnathan shares his brain tumour story. Johnathan experienced a sudden and severe onset of symptoms the day before Thanksgiving, leading to an unexpected diagnosis of glioblastoma multiforme (GBM).
Johnathan recalls the ordinary start with what he assumed were hereditary migraines. Still, he details how things took a severe turn when he could no longer comprehend text and experienced severe dizziness and vertigo, prompting an emergency room visit. This visit quickly escalated as medical tests revealed a mass on his brain, leading to urgent referrals and treatments that upended his life.
Despite the shocking and rapid progression of his condition, Johnathan talks about the ongoing treatment, including surgery and the use of an Optune device, and how these have impacted his daily life. He also touches on the emotional and psychological effects of his diagnosis, both on himself and his family.
Throughout the conversation, Johnathan shares insights into his coping mechanisms, including starting a blog to share his experiences and connect with others in similar situations. He emphasizes the importance of community support, positive thinking, and adapting to a "new normal."
Visit Johnathan's blog and connect with him here www.johnvsgbm.com
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