Man Up: Parenting a Child Born with a Rare Genetic Syndrome

Wisdom Shared with Carole Blueweiss

FOR MORE INFORMATION:

The 5P- Society (Cri du Chat)
https://fivepminus.org/

Cri du Chat Society Facebook Page
https://www.facebook.com/CriDuChatSociety

National Organization for Rare Disorders
https://rarediseases.org/rare-diseases/cri-du-chat-syndrome

NOTABLE QUOTES FROM THIS EPISODE:

You are welcome you to share the wisdom from this episode. Please be sure to credit: “Ep. 5, Damas Manderson, Courtesy of Wisdom Shared Podcast with Carole Blueweiss.”

22:30 “When you’re hurt, you hurt others”

30:59 “If empathy was the first point of reference for people, that would go a long way”

39:07 - “A handful of special needs parents can fall into the category of where the normal children become caregivers whether they want it or not.”

44:00: “What does it cost me? It’s only cost me money. What have I gained? A loving wholesome family, with a value that we will carry forever. My family is my legacy.”

50:00 “There’s not an instruction book for how to be an effective special needs mother and father or husband and wife.”

51: “Kindness doesn’t mean weakness. Kindness means strength.”

EDITOR’S NOTE:
Damas and Dina Manderson intend to start a foundation for their daughter, Kennedy Rose. These episode notes will be updated to include foundation information when it is available. (1/9/2021)

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The Wisdom Shared Team

• Audio Engineering by Steve Heatherington of Good Podcasting Works
• Co-Producer and Marketing Coordinator: Kayla Nelson
• Production Assistant: Becki Leigh