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Contenido proporcionado por Williams Syndrome Association. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Williams Syndrome Association o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
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Ep 36 - Defiantly Choosing Joy with Jess Holsapple and Tabitha Toney

1:09:33
 
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Contenido proporcionado por Williams Syndrome Association. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Williams Syndrome Association o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.

During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies.

Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinland on Instagram and TikTok, and on Facebook. In addition to training the next generation of nurses, Tabitha serves as the camp nurse for the WSA's yearly summer camps for kids and teens in Georgia.

We thank them for their honesty and vulnerability in sharing their stories with us.

Please join us on May 31st and June 1st for the Weekend for Williams fundraiser where we are turning Awareness into Action. For more information and to donate to fund WSA programs and research, go to weekendforwilliams.org.

  continue reading

43 episodios

Artwork
iconCompartir
 
Manage episode 420751370 series 3450428
Contenido proporcionado por Williams Syndrome Association. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Williams Syndrome Association o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.

During Williams Syndrome Awareness Month, it's important to recognize that, while our community has much to celebrate, there are also some very real challenges and tragedies.

Jen and Brendan are joined by Jessica Holsapple and Tabitha Toney, two mothers who each lost their young boys from complications with Williams syndrome. Jess continues to share her journey with Griffin at Life in Griffinland on Instagram and TikTok, and on Facebook. In addition to training the next generation of nurses, Tabitha serves as the camp nurse for the WSA's yearly summer camps for kids and teens in Georgia.

We thank them for their honesty and vulnerability in sharing their stories with us.

Please join us on May 31st and June 1st for the Weekend for Williams fundraiser where we are turning Awareness into Action. For more information and to donate to fund WSA programs and research, go to weekendforwilliams.org.

  continue reading

43 episodios

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