No One Would Listen; With Carrie Haight

Slam the Gavel

Slam the Gavel welcomes Carrie Haight, a licensed therapist of 20 years to the podcast. Her story began in November of 2021 when her daughter's leg swelled out of no where. At the time it appeared like maybe she just got a small injury from new sports equipment, but that wasn’t the case.
Her daughter began having more symptoms of swelling and severe pain in both legs, extreme migraines, constant vomiting, couldn’t fight any virus or infection, fatigue and many more symptoms that made no sense at the time. Sadly, due to a false call to CPS, which led to nearly 2 years of knowingly false accusations and court orders that refused her to see a doctor.
In May of 2023, all was cleared, but her daughter was still not any better and she was getting worse. The legal fees alone were enough to break a two income household, but Carrie's daughter only has her mother. She is her MIRACLE child from an anonymous IVF donor.
In August of 2023 she saw her Rheumatologist who she hadn’t seen in a very long time, due to court orders, who finally figured this out, but she also figured out there was more than just what she could diagnose and help treat. This was not Munchausen By Proxy as CPS was trying to label her with.
Carrie's daughter was diagnosed with AMPS (it is basically a wider spread version of Chronic Regional Pain Syndrome), but that wasn’t explaining why she was constantly catching everything she came in contact with, but worse than an average healthy child. Her daughter has a permanent compromised immune system. She has a low Immunoglobulin M, which can’t be treated any other way than monthly IVIG or a subcutaneous version of IVIG, given weekly. This is a treatment that she will need for the rest of her life.
Carrie thought she had great medical insurance, but she was wrong. Insurance will not cover the cost of an intensive outpatient that would be holistic approach as she’s only 10 and the medications used are too dangerous, or the cost of a nurse to administer the IVIG.
Finally figuring this out, but not before they lost everything financially to fight the false allegation (and these treatments are ridiculously expensive).
Losing 2 years of being able to be a child, was just not right. Carrie is working 3 jobs, and it is still not helping to dent the bills so she can at least be around other children so she can socialize and play. Carrie having MS herself, was wearing herself so thin she feared that she won’t be able to keep up with her daughter's needs if she doesn’t slow down even a little.
Carrie will continue to advocate for others and in the future, run for Senate.

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