Included: The Disability Equity podcast

#Science #Society #Prateek Gajwani #Bonnielin Swenor #Access #Disability #Equity #Healthcare #Publichealth

16:03

Learn about the differences between Alzheimer's and dementia, and how Alzheimer's disease progresses. We talk about why catching the disease early can make a big difference. Dr. Sharon Cohen and Dr. Yaakov Stern walk us through the stages of Alzheimer's disease, from when there are no symptoms to when memory issues start to show. They explain the stages of Alzheimer’s and how it develops over time. We also hear from Kelly, who explains her personal experiences and concerns about developing Alzheimer’s, and what she does about it. For links to resources and information covered in this series, visit our website at HealthUnmuted.com/resources What did you think of this episode? We’d love to hear from you. Please visit healthunmuted.com/feedback to let us know! Rethinking Alzheimer’s Disease was made possible with support from Eisai Inc. [00:00:00] Introduction [00:03:10] What's the difference between Alzheimer's disease and dementia? [00:07:04] When does Alzheimer’s begin to develop? [00:09:08] What is Mild Cognitive Impairment (MCI)? [00:10:36] What is subjective cognitive decline? [00:11:59] What is preclinical Alzheimer's disease? [00:13:13] Why is it important to detect Alzheimer’s disease early? Disclaimer: The content provided in this podcast is intended for informational purposes only. It is not a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified healthcare provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have heard on this podcast. Reliance on any information provided by this podcast or its guests is solely at your own risk. ©2024 Mission Based Media Ltd • April 2024 • AD-M2059…

Included: The Disability Equity Podcast

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A podcast from the Johns Hopkins University Disability Health Research Center that challenges stereotypes of disability by sharing stories, data, and news. Episode transcripts can be found at http://disabilityhealth.jhu.edu/included

43 episodios

Included: The Disability Equity Podcast

updated hace 2 años

Series en casa•Feed

43 episodios

#Science #Society #Prateek Gajwani #Bonnielin Swenor #Access #Disability #Equity #Healthcare #Publichealth

Todos los episodios

Included: The Disability Equity Podcast

1
43: Decolonizing Social Science Methods 21:20

hace 2 years21:20

21:20

This episode features Dr. Autumn Asher BlackDeer, a queer decolonial scholar from the Southern Cheyenne Nation and an assistant professor in the Graduate School of Social Work at the University of Denver. She discusses how social science methods can be reshaped to learn from communities and implement this knowledge into practice. Our conversation centers on how evidence mapping and practice-based evidence can address and challenge Western research structures. Dr. BlackDeer discusses these methods and her recent publication, "Evidence Mapping: Interventions for American Indian and Alaska Native Youth Mental Health." Her conclusions reveal that reconnecting Indigenous youth to their culture is a crucial and underutilized intervention to improve mental health. Episode Transcript: Episode transcript available here Additional episode transcripts can be found at https://disabilityhealth.jhu.edu/included/episode-transcripts/ Related Links: Asher BlackDeer, A., & Patterson Silver Wolf, D. A. (2020). Evidence mapping: Interventions for American Indian and Alaska Native youth mental health. Journal of Evidence-Based Social Work , 17 (1), 49-62. https://www.tandfonline.com/doi/full/10.1080/26408066.2019.1624237 Dr. BlackDeer's website: www.AutumnAsherBlackdeer.com…

Included: The Disability Equity Podcast

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42: Reproductive Health and Disability 23:44

hace 2 years23:44

23:44

Dr. Willi Horner-Johnson takes a cross-disability approach to pregnancy and health in her work as Associate Professor at Oregon Health and Science University's School of Public Health, director of the Oregon Office on Disability in Health, and co-PI of the National Center for Disability and Pregnancy. Her work studies both pregnancy of people with disabilities and the birth of people with disabilities from preconception to post-partum health. She calls for a culture shift in reproductive care to respect people with disabilities, and for more accessible healthcare settings. Episode Transcript: here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Other links: "Perinatal Health Risks And Outcomes Among US Women With Self-Reported Disability, 2011–19," Health Affairs: https://www.healthaffairs.org/doi/10.1377/hlthaff.2022.00497 "'It Would Have Been Nice to Have a Choice': Barriers to Contraceptive Decision-making among Women with Disabilities," Women's Health Issues: https://www.whijournal.com/article/S1049-3867(22)00001-9/fulltext OHSU University Center for Excellence in Developmental Disabilities - Reproductive Health Research: https://www.ohsu.edu/university-center-excellence-development-disability/reproductive-health-research National Center for Disability and Pregnancy Research homepage: https://heller.brandeis.edu/disability-and-pregnancy/…

Included: The Disability Equity Podcast

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41: Web Accessibility 24:48

hace 3 years24:48

24:48

Jared Smith, associate director of WebAIM, shares his expertise from over 20 years of working in web accessibility. In this episode, Smith highlights how online access means equity to information and ecommerce for all. He describes his team’s systems to search websites for a wide variety of barriers, even with few federal guidelines in place. Tune in to hear how he views the future of technology, and how you can do your part to ensure an equitable online environment. Episode Transcript: here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more at: https://webaim.org/ Other links: The WebAIM Million – 2022 Update: https://webaim.org/blog/webaim-million-2022/ COVID-19 Vaccine Website Accessibility Dashboard: https://disabilityhealth.jhu.edu/vaccinedashboard/webaccess/…

Included: The Disability Equity Podcast

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40: Making Their Days Happen: Personal Assistant Services 32:02

hace 3 years32:02

32:02

In this episode, we welcome back Dr. Lisa Iezzoni, a professor of medicine at Harvard Medical school and an internationally recognized health services researcher, to discuss her new book, Making Their Days Happen: Personal Assistant Services Supporting People with Disability Living in Their Homes and Communities. Learn about the research findings and personal anecdotes that motivated Dr. Iezzoni’s book about policy, interactions with the disability community, and more. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ The book is available at any bookseller https://www.amazon.com/Making-Their-Days-Happen-Communities/dp/1439920761…

Included: The Disability Equity Podcast

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39: Disability Health Equity and Health Implementation Science 36:37

hace 3 years36:37

36:37

Dr. Megan Morris is a University of Colorado-Anschutz Associate professor, certified speech-language pathologist, and founding director of the Disability Equity Collaborative, a community aimed at advancing equitable care for patients with disabilities through practice, policy and research. Dr. Morris focuses on understanding, identifying and addressing disparities in care delivered to patients with disabilities and uses patient-informed data to address disparities via pragmatic and sustainable changes such as documenting disability in the electronic health record to inform accommodations. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Link: https://www.disabilityequitycollaborative.org/…

Included: The Disability Equity Podcast

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38: Disability and Emergency Management During COVID-19 24:04

hace 3 years24:04

24:04

Linda Mastandrea, Director of the Office of Disability Integration and Coordination at the Federal Emergency Management Agency (FEMA), shares her work as a disability law and civil rights attorney. She discusses her role in the COVID-19 response, the lack of data on how emergencies impact people with disabilities, and the barriers for people with disabilities to access emergency assistance. This episode highlights the importance of including people with disabilities in the decision-making process. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Resource Links Learn more about the FEMA Office of Disability Integration and Coordination (ODIC) and its mission, and subscribe to receive news and updates about our work: Office of Disability Integration and Coordination | FEMA.gov Learn more about the ODIC Director, Linda Mastandrea: Linda Mastandrea | FEMA.gov Learn and share disaster preparedness resources for People with Disabilities: Individuals with Disabilities | Ready.gov I Personas con discapacidades | Ready.gov…

Included: The Disability Equity Podcast

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37: Health and Social Equity for People with Disabilities 28:53

hace 3 years28:53

28:53

Dr. Kimberly Phillips, Research Assistant Professor at the Institute on Disability at the University of New Hampshire, provides an overview of her broad range of projects on increasing equity for people with disabilities through employment and community participation. She differentiates the medical and social models of Disability and provides insight and evidence from her research aiming to improve disability awareness and inclusion via new training programs with an aim to ultimately reduce barriers and improve healthcare for people with disabilities. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Article link https://pubmed.ncbi.nlm.nih.gov/34103262/…

Included: The Disability Equity Podcast

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36: Allyship and Education to Combat Disability Bias 43:47

hace 3 years43:47

43:47

Dr. Kathleen Bogart, Director of the Disability and Social Interaction Lab at Oregon State University, discusses her research on congenital and acquired disabilities, ableism, and stigma-related stress management. She describes the disability self-concept as an individual's disability identity and how someone navigates the world in relation to that identity. Dr. Bogart additionally outlines the importance of allyship for people with disabilities, the role of education to combat ableism, and a need to create better metrics for disability research. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: Disability Advocacy and Research Network (DARN): https://darndisability.org/ Psychology Today blog: https://www.psychologytoday.com/us/blog/disability-is-diversity .…

Included: The Disability Equity Podcast

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35: Disability Economics 23:35

hace 3 years23:35

23:35

Dr. Sophia Mitra, Professor of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the association between disability and economic outcomes. She describes how the current economic system contributes to economic deprivation for people with disabilities, including unemployment, lack of health insurance, low educational attainment, and more. Dr. Mitra explains that people with disabilities have higher costs of living, and describes policies that could help reduce economic inequities for Americans with disabilities. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: Extra Costs of Living with a Disability: https://papers.ssrn.com/sol3/papers.cfm?abstract_id=2967775 Disability Data Initiative: https://disabilitydata.ace.fordham.edu/ Disability Studies Program: Disability Studies | Fordham…

Included: The Disability Equity Podcast

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34: Healthcare During the COVID-19 Pandemic and Beyond 37:09

hace 3 years37:09

37:09

MaryBeth Musumeci, associate director of the Program on Medicaid and the Uninsured at the Kaiser Family Foundation, discusses how states are expanding access to behavioral healthcare, including the role of telehealth. She also describes the ethical issues behind COVID-19 mandates, the rights of nursing home residents during the pandemic, and new opportunities in the American Rescue Plan. In this compelling episode, Musumeci highlights the importance of making these improvements to healthcare access permanent. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: https://www.kff.org/medicaid/issue-brief/voices-of-paid-and-family-caregivers-for-medicaid-enrollees-receiving-hcbs/ https://www.kff.org/medicaid/issue-brief/state-variation-in-medicaid-ltss-policy-choices-and-implications-for-upcoming-policy-debates/ https://www.kff.org/coronavirus-covid-19/issue-brief/state-medicaid-home-community-based-services-hcbs-programs-respond-to-covid-19-early-findings-from-a-50-state-survey/ https://www.kff.org/medicaid/issue-brief/potential-impact-of-additional-federal-funds-for-medicaid-hcbs-for-seniors-and-people-with-disabilities/…

Included: The Disability Equity Podcast

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33: Disability Data Initiative 24:53

hace 3 years24:53

24:53

Dr. Sophie Mitra, professor in the department of economics, co-director of the disability studies program, and founding director of the research consortium on disability at Fordham University, discusses the disability data initiative. Dr. Mitra shares her findings that people with disabilities are often not included in national surveys, not asked meaningful questions, and can be stigmatized. Dr. Mitra's work emphasizes that disability is common and that the inequalities associated with disability vary across countries. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: Disability Data Initiative: https://disabilitydata.ace.fordham.edu/ Disability Studies Program: Disability Studies | Fordham…

Included: The Disability Equity Podcast

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32: Disability Moral Asymmetry 39:37

hace 3 years39:37

39:37

In this episode, the Director of the Institute for Ethics and Public Affairs at San Diego State University, Dr. Joe Stramondo , discusses his paper "Causing Disability, Causing Non-Disability: What's the Moral Difference?". In this conversation, he describes society's standard view of disability and the reasons why there is a moral asymmetry between causing a disability and not causing a disability. This important conversation gets to the core of many debates about disability, especially in medical settings. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Useful Links: Published Work: https://scholar.google.com/citations?user=4FPA1i4AAAAJ&hl=en SDS Webpage: https://disstudies.org/…

Included: The Disability Equity Podcast

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31: Music and Hearing 30:32

hace 3 years30:32

30:32

Music producer, composer, and hearing technology consultant Richard Einhorn describes his diverse experiences from creating award-winning music to advocating for adults with hearing loss worldwide. Einhorn tells his story of suddenly losing hearing and experimenting with powerful hearing assistance technologies. He shares his optimism for universal design to destigmatize hearing assistance and allow music to be accessible to all. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ Learn more at: www.richardeinhorn.com Other links Preventing and Negating Hearing Loss Sound on Sound Magazine : https://www.soundonsound.com/sound-advice/preventing-negating-hearing-loss LE Audio: The Evolution of Bluetooth: Sound on Sound Magazine : https://www.soundonsound.com/sound-advice/le-audio-evolution-bluetooth Sound of Real: Hearing Health Magazine : https://hearinghealthfoundation.org/blogs/sound-of-real-a-music-composers-reactions-to-sound-of-metal Biden’s Latest Executive Order Is a Boon for People with Hearing Loss Hearing Health Technology Matters Web site https://hearinghealthmatters.org/findhearing/biden-executive-order-otc-hearing-aids-people-with-hearing-loss/ The Consumerization of Hearing Health Comes of Age Canadian Audiologist Magazine: https://canadianaudiologist.ca/issue/volume-8-issue-1-2021/hearing-health-consumerization/ Music, Sound Quality, and Hearing Aids: An Interview with Brian Moore and Richard Einhorn Canadian Audiologist Magazine: https://canadianaudiologist.ca/issue/volume-5-issue-3-2018/moore-einhorn-interview-feature/…

Included: The Disability Equity Podcast

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30: Disability and Employment 34:10

hace 3 years34:10

34:10

This episode features Taryn Williams, the Assistant Secretary of Labor for Disability Employment Policy at the United States Department of Labor. She shares the mission of the Office of Disability Employment Policy (ODEP) and this office's policies and programs aimed at increasing employment opportunities for people with disabilities. She discusses the interconnection between COVID-19 and employment for people with disabilities, including a focus on long-COVID and mental illness, and provides perspective on how the pandemic has created a possibility of more flexible work arrangements and higher education to advance disability inclusion in the workforce. Episode Transcript: Click here Episode transcripts can be found at http://disabilityhealth.jhu.edu/included/ A few U.S. Department of Labor Office of Disability Employment Policy key resources: National Disability Employment Awareness Month (NDEAM): dol.gov/NDEAM Job Accommodation Network: AskJAN.org Employer Assistance and Resource Network on Disability Inclusion: AskEARN.org Partnership for Employment and Accessible Technology (PEAT): peatworks.org Center for Advancing Policy on Employment for Youth (CAPE-Youth): capeyouth.org ODEP’s new practice brief, Leveraging the Shift to Remote Work to Increase Employment of People with Disabilities : https://askearn.org/wp-content/uploads/2021/08/EARN_2021_Practice_Brief_Remote_Work.pdf Workplace resources regarding COVID-19 and Long COVID-19, including information about reasonable accommodations and supports: https://www.dol.gov/agencies/odep/topics/coronavirus-covid-19-long-covid…

Included: The Disability Equity Podcast

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29: Disability and Intersectionality 19:20

hace 3 years19:20