Remarkable: Life with Rett Syndrome
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Contenido proporcionado por Tracey Hoyng. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Tracey Hoyng o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
A podcast about the families all over the world who love someone with Rett Syndrome. "One day you will tell your story of how you've overcome what you're going through now, and it will become part of someone else's survival guide" Rett Syndrome is a rare genetic disorder with no current cure. As a parent of a daughter with Rett Syndrome, I wanted to talk to other parents to hear their stories and also give the newly diagnosed a positive and encouraging place to find comfort. Check back towards October ,which is Rett Syndrome Awareness Month each year.
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13 episodios