The Messiness of Parenting is a podcast where we talk about the ups and downs - and all the joys - of parenting. Raising children is the hardest job anyone can do. Join us as we share genuine, raw moments from parenting and create a supportive community where every parent can feel seen and heard. We'll be offering practical tips, innovative parenting ideas, and comforting stories that highlight the universal challenges of raising children. Through our discussions, we hope you’ll find reassur ...
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The Music, Mind, and Movement Podcast features interviews with musicians, educators, health and wellness professionals, and many more who take a holistic view of the musician’s life. Together we explore some of the unique physical, mental, social, and emotional challenges that musicians face and how we can meet these challenges in ways that help us grow both as musicians and as healthy, creative, resilient humans. Karen Bulmer is a tuba player, music professor, meditation facilitator, and mo ...
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Welcome to conversations about Advance Care Planning. This is the podcast where we talk about Advance Care Planning, what it is, how to do it and why it matters. Conversations about Advance Care Planning has grown from my passion to support professional understanding and promote public awareness about planning ahead. If you are a team looking to provide better end of life care, or set up a one off or complete education programme in end of life care head to https://www.speakformelpa.co.uk whe ...
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Join Karen in a conversation with Karlina Belbeck and Holly VanEvery, both Family Gathering’s EarlyON Facilitator, Indigenous led EarlyON, as they talk about Who’s in Your Village. We will talk about the people we surround ourselves with, how those we call family may not be related biologically to us, and how we learn and grow in our relationships …
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This episode expands on a discussion I had with Nick Ferrari from LBC around assisted dying, specifically in response to Wes Streeting statement that he is “not sure that as a country we have the right end-of-life care available to enable a real choice on assisted dying.” It’s my first solo episode and I explore the reality of end-of life-care prov…
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Trigger Warning: In this episode we talk about the postpartum period, perinatal mood disorder and suicide, which can be distressing. Please take care while listening - and see a list of important resources below. Join Shalyn and Karen in a conversation with Kelly Gascoigne, Outreach Midwife with Grand River Health Centre, as we talk about the post-…
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In this episode it is my pleasure to speak with Beverley Bulmer, a Funeral Celebrant and founder of Leaving Gracefully, End of Life Planning. We explore the difference it can make when plans are in place, when and how to take the first steps and what Leaving Gracefully can offer. If you are a team looking to provide better end of life care, or set …
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All Things Sleep
1:07:23
1:07:23
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Join Emily and Karen in a conversation with Emily Dunn, Public Health Nurse with Brant County Health Unit, as we talk all things sleep! We will talk about typical sleep patterns for children from newborn stage and on. The impact of sleep deprivation, sleep regression, sleep training and conversations we can have to help us prepare for those first s…
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Sam Royston is Director of Policy and Research of Marie Curie, the UK’s end of life charity. He was previously Policy Director at The Children's Society, and is a former chair of the End Child Poverty coalition. He is also author of the book "Broken Benefits: What's gone wrong with welfare reform". In this episode we discuss the Marie Curie 2022 Dy…
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Join Shalyn and Karen in a conversation with Deanna Thomas, Child Development Worker with Child and Family Services EarlyON team, as we talk all about good enough parenting and what that means. We will talk about how we as parents and caregivers show up for our children, how we connect with them and how we think about ourselves as parents and careg…
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In this episode it is my pleasure to talk with Karen Turner. Karen is a physiotherapist with a clinical background in oncology and palliative care. Karen is now Head of Improvement at the Royal Free Hospital where she Champions the benefit and impact of asking What Matters to You. We explore how Karen became interested in the What Matters to You mo…
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Join Shalyn and Karen in a conversation with Theresa Vidal Child and Youth Worker and EDI Coordinator with Woodview Mental Health and Autism Services as we talk all about all things Regulation. We will talk about what regulation is, how we as the adults need to self-regulate and then how we can co-regulate with our children, and teaching them how t…
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In this episode I talk with Dr Joseph Hawkins, best known as Joe to his colleagues and patients where he works at St Peter’s hospital in Chertsey. Joe is a palliative medicine consultant and has worked in community, hospital and hospice settings as both registrar and consultant. If you are a team looking to provide better end of life care, or set u…
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Join Emily and Karen in a conversation with Kelly Bryant, a Child and Youth Worker with Woodview Mental Health and Autism Services as we talk all about the power of connection and being in relationship with your children. We will talk about how the power of that connection and relationship can be built and sustained through the challenges and joys …
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I am thrilled that Dani will be joining me as a regular guest on the podcast. We’re going to be reflecting on updates, resources and our experiences around Advance Care Planning. In this episode we explore recent research into radiological tests in the last six months of life. We also discuss the Dr Kathryn Mannix TED Talk, Heart Stopping moments a…
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In this episode it is my pleasure to talk with Penny Shepherd. Penny is the coordinator and co-founder of Ageing Without Children East Kent (AWOC East Kent), a group run by and for people who are ageing without the support of adult children, either because they never had children or for other reasons. We explore the Advance Care Planning challenges…
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As parents, we often find ourselves questioning if we're doing enough or if we're doing it right. On The Messiness of Parenting, we're opening up the conversation about the real, unfiltered world of parenting, brought to you by the City of Brantford Children's Services and Early Learning and Child and Family Services of Grand Erie. Join us as we di…
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In this very special 100th episode I talk with Martin Whiskin, an award winning voiceover artist and podcast editor. Martin is very importantly the technical expertise behind Conversations About Advance Care Planning. We reflect on episodes 75 to 100 and how they have impacted us both personally and professionally. As ever, I am blown away by Marti…
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#99 The Victoria & Stuart Project: helping people with learning disabilities plan for the end of their life
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In this episode it is my pleasure to meet the team behind the Victoria and Stuart Project, a tool kit and resource for end of life planning for people with learning disabilities within all care settings. I learn about the triggers for the project, how the work developed and find out about the incredible resource that has been created. If you are a …
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#98 Stopping chemotherapy: Treatment, hope and time with Louisa Nicoll, wife of John
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In this episode I talk with Louisa Nicoll, wife of John and palliative care nurse. Louisa generously shares their family experience following John's sudden and life changing diagnosis of cancer. We talk about what it felt like for John to receive chemotherapy and the decision to stop palliative chemotherapy. We also explore what the word treatment …
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#97 The End of the Road Show - how the arts can support Advance Care Planning with Su Squire
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In this episode it is my pleasure to talk with Su Squire. Su is a storyteller, poet, theatre-maker and Death Cafe facilitator. Her performance company, Off the Twig, creates work that encourages conversation and positive action around themes of death, dying and grief. We explore the catalyst that led to Sue’s creative work and the impact that story…
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In this episode it is my pleasure to talk with Tara Humphrey, founder and CEO of THC Primary Care. It is a super episode in which we explore why Advance Care Planning is so important to Tara and how to use the model of Getting Your House in Order to guide planning ahead. Our conversation shows how to normalise Advance Care Planning and I am so grat…
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In this episode it is my pleasure with Radha Sundaram an NHS consultant in intensive for the last 16 years in Scotland. Radha is an advocate for organ donation and improving awareness amongst our diverse society. She has had a long-standing interest in end of life care and has been responsible for the guidelines in NHS Greater Glasgow and Clyde. Ra…
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In this episode it is my pleasure to talk with Evie King, author of the incredible book Ashes to Admin. I learn from Evie what it means to have a Section 46 council funeral and, most importantly, that nobody is nobody. Evie describes the care and detail that goes into a council funeral dispelling myths about what it means to die alone and sharing w…
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In this episode it is my pleasure to talk with Dr Lucy Pain, who is this year’s Dying Matters Awareness week expert. I have the chance to thank Lucy publicly for recommending Conversations About Advance Care Planning as part of the recommended books (and more) for Dying Matters Awareness Week. We explore the importance of week, why language matters…
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In the final episode of our series of podcasts, we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This episode focuses on Advance Care Planning associated specifically with End of Life Care. We explore what is meant by End of Life Care and break down care into the last years,…
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In the fifth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance Care Planning. This quite emotive episode focuses on legacy and memory making and includes wonderful examples of what this looks like in practice. You will also find a wealth of material in the show notes and resource se…
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#90 Getting Your House in Order: Thinking about who would speak for you with Clare Fuller & Dani Ayre
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In the fourth episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and build on our discussions to start thinking about who would support you to make decisions or make decisions on your behalf if you ever lost…
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#89 Getting Your House in Order: Thinking about what you don’t want with Clare Fuller & Dani Ayre
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In the third episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you don’t want and how this can be documented in an Advance Decision to Refuse Treatment. If y…
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#88 Getting Your House in Order: Thinking about the things you do want with Clare Fuller & Dani Ayre
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In the second episode we continue to explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We reflect on the foundations, What Matters Most to a person, and move on to explore thinking about the things you do want and how this can be documented. If you are a team looking to provide better end o…
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#87 Getting Your House in Order: Thinking about what matters most to you with Clare Fuller & Dani Ayre
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In this episode we explore the model of Getting Your House in Order, describing it as a how to guide for Advance care Planning. We start at the very foundations and talk about why What Matters Most is at the heart of Advance Care Planning. If you are a team looking to provide better end of life care, or set up a one off or complete education progra…
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In this episode it is my pleasure to talk with Wendy Hills. Wendy has over 30 years’ experience as a Nurse qualifying in 1992, and specialising in Cancer and Chemotherapy. For a decade she developed chemotherapy services, including developing Nurse led chemotherapy and intravenous access in East Kent Hospitals. Wendy is currently the Director of Nu…
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#85 The Safari Concept with Dr. Christian Ntizimira
1:07:24
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In this episode it is my pleasure to talk with Dr. Christian Ntizimira, author of “The Safari Concept: An African Framework on End-of-Life Care” and Founder/Executive Director of the African Center for Research on End-of-Life Care. Christian shares the journey which led him to write the Safari Concept and we explore how culture and belief impact co…
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In this episode it is my pleasure to talk with Alison Gardner & Sophy Horner from St John's Hospice about their incredible programme Last Days Matter. The programme aims to support people in looking after their loved ones at home and is very much a compassionate community approach to care. I learn how the programme was developed, what it includes a…
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In this episode it is my pleasure to talk with Gary Ryecroft, a solicitor and resident legal expert on Rip Off Britain. Gary has also been a trustee for what was the National Council for Palliative Care and later a chair of the Dying Matters Forum. This is a supper conversation, we talk about the podcast Gary created as part of the We Need to Talk …
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In this episode it is my pleasure to talk with Peter Berry and Deb Bunt. Peter was diagnosed at 50 with early onset Alzheimer’s. Previously the owner of a thriving timber business, Peter’s life changed upon the diagnosis. He has emerged through depression and two suicide attempts to be a passionate advocate of living well with dementia. A keen cycl…
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#81 Talking through the intersection between critical care & EoLC with paramedic Jim Walmsley
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In this episode it is my pleasure to talk to Jim Walmsley, a specialist paramedic in critical care. Jim talks about how Advance Care Planning impacts the work he does, sharing stories and experience.Jim also explains why he is fundraising for the Intensive Care Society and how you can follow and support his iconic high alpine challenge. If you are …
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I’d heard about Death Cafés but never attended one and have always wanted to learn more about the movement. In this episode I have the pleasure of talking with Ewout, facilitator of the Death Café Suffolk Transitions. We talk about the origins of Death Cafés, how they run in practice and what drew Ewout to become involved. If you are a team looking…
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In this episode it is my pleasure to talk with Justine Robinson, Occupational Therapist and Wellbeing Services manager at the Pilgrims Hospice. I learn about the role of an Occupational Therapist and we talk about how therapy work can help find the person in a patient. I learn too about the innovative Blackbird project, the story behind the project…
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In this episode it is my pleasure to talk with Professor Alison Leary. Alison is a Senior Consultant at the World Health Organisation, Human Resources for Health, and the Chair of Healthcare & Workforce Modelling at London South Bank University. It’s an important episode and based on Alison’s family experience. We talk the impact of receiving a for…
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#77 What Matters Most in action and the power of Communication and kindness with Caroline England
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Peter Camrass of Camrass Wills kindly supplied sponsorship to produce this episode. Peter has had no influence in the creation, development or content of this podcast and full control remains the responsibility of Clare Fuller.This is an important episode of Conversations About Advance Care Planning. It’s a very reflective episode with learning for…
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In this episode it is my pleasure to talk with Judith Silver, founder of Companion Voices. I learn about the origins, development and current work of Companion Voices. Judith shares what Companion Voices offers to people who are dying and describes how groups normalise conversations around death and dying. We talk about raising awareness of Compani…
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In this episode it is my pleasure to catch up with Martin and look back at episodes 51 to 74 of Conversations About Advance Care Planning. We talk about the episodes that have had the greatest impact on Martin and address barriers to creating Martin’s Lasting Power of Attorney. As ever, I am surprised and blown away by Martin’s creative approach to…
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This is the last in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode w…
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This is the sixth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode …
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This is the fifth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode …
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This is the fourth in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode…
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This is the third in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode …
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Dying at home, what you need to know and how to be prepared - What support is available to help look after a person who is dying at home. This is the second in a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate …
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This is the first of a series of seven podcasts about End of Life Care, specifically towards the last days of life and when someone wishes to die at home. Rachel kindly agreed to make these with me and recreate some of the conversations I have had over so many years about dying at home, what you need to know and how to be prepared. In this episode …
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In this episode it is my pleasure to talk with Lizzi Collinge. We talk about what happened following her Grandma's stroke focusing on missed opportunities to talk about Ordinary Dying and the difference this would have made. We discuss the emotive subject of Clinically Assisted Hydration and Lizzi explains what she has learned about her Grandma's d…
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In the previous episode I spoke with Dr Barny Hole and Dr Emma Murphy about the trajectory of kidney disease, conversations around stopping dialysis and what Advance Care Planning with kidney disease looks like. We realised there was so much more we had to talk about and met again to explore the complexity of language associated with Palliative and…
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In this episode it is my pleasure to talk with Dr Barny Hole and Dr Emma Murphy. Barny is a kidney doctor currently studying for a PhD. Barny’s research looks at how older people with kidney failure decide between dialysis and comprehensive conservative care. Emma is an Associate Clinical Professor in Nephrology Nursing with a combined clinical and…
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