Los mejores podcasts de The Spondylitis Association Of America (SAA (2024)

1
Teeing Up for Spondylitis: Curt and Grant Rocca’s Journey to Raise Awareness 52:01

20h ago52:01

52:01

Curt and Grant Rocca, father and son, discuss their journey to Grant’s diagnosis and their mission to raise awareness about spondylitis through their annual charity golf tournament.

1
Daily Routines and Rituals for Mental Endurance in Managing Spondyloarthritis 1:00:08

8d ago1:00:08

1:00:08

Michael Leach, author, motivational speaker, and coach, discusses his personal experience with AS and how daily routines can improve mental health.

1
What to Do If Your Treatment Is Denied: A Guide to Self-Advocacy 35:59

15d ago35:59

35:59

Victoria Killian, a member of SAA’s Advocacy Committee, discusses steps to take if your treatment is denied.

1
Navigating the Path to SSDI Benefits for Spondylitis Patients 42:17

22d ago42:17

42:17

TJ Geist, an SSDI benefits advocate, discusses the process to apply for Social Security Disability Insurance (SSDI) benefits.

1
Pilates for Spondyloarthritis: Flexibility and Strengthening Through Movement 40:48

29d ago40:48

40:48

Shane Keith Rhoads, MS, CSCS,a professional trainer, discusses how pilates can improve flexibility and strength for people managing SpA.

1
Juvenile Spondyloarthritis: Research and Advocacy Efforts with Dr. Pam Weiss and Parent Advocate Emily Neu 35:50

1M ago35:50

35:50

Pediatric rheumatologist Pam Weiss, MD, and Parent Advocate Emily Neu discuss juvenile spondyloarthritis and its treatment, and the Back Off JSpA research study.

1
Navigating the Health Care System, Access to Treatment and Insurance Companies: The Patient’s Role 51:51

1M ago51:51

51:51

Robin Dore, MD, rheumatologist and member of SAA’s Advocacy Committee, discusses how patients can advocate for themselves while working with their physicians and health insurance to get needed healthcare.

1
Ayurvedic Concepts of Food and Nutrition 45:52

2M ago45:52

45:52

Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an overview of the Ayurvedic guidelines for nutrition and food.

1
Podiatric Care: Enhancing Foot Health for Spondyloarthritis Patients 41:13

2M ago41:13

41:13

Dr. Lindsey Cherry, Specialist Podiatrist in Rheumatology, discusses how spondyloarthritis can impact your feet and how a podiatrist can help.

1
Your Stories: A Conversation with Dancer Alicia Graf Mack 42:10

2M ago42:10

42:10

Alicia Graf Mack, Dean and Director of Juilliard Dance, discusses her journey with spondyloarthritis and her career as a professional dancer.

1
Spondyloarthritis and Aging: Navigating Changes in Later Years 37:20

3M ago37:20

37:20

Rheumatologist Raymond Yung, MD, specializing in geriatric medicine and rheumatology, discusses how spondyloarthritis impacts people as they age.

1
The Spondyloarthritis Athlete: Overcoming Obstacles and Leading Advocacy Efforts 48:35

3M ago48:35

48:35

Ultramarathon runners and endurance athletes Helgi Olafson and Brandon Robert Hozack discuss their journey with spondyloarthritis, their advocacy and awareness efforts, and how they overcome their challenges with AS.

1
An Introduction to Ayurveda with Loribeth Cohen 59:15

3M ago59:15

59:15

Loribeth Cohen, PT, CAP, IMT-C, NET Practitioner, provides an introduction to Ayurveda and how this practice strives to move people from a state of “dis-ease” or imbalance to more wholeness.

1
Speak Up with Author Stephen Shedletzky 50:10

4M ago50:10

50:10

Stephen Shedletzky, author of Speak Up Culture, discusses how people living with spondyloarthritis can find their voice to advocate for their needs.

1
From World Traveler to Warrior Advocate: A Conversation with Carrie Kellenberger 44:56

4M ago44:56

44:56

Carrie Kellenberger, SpA advocate and award-winning blogger of myseveralworlds.com discusses her journey with spondyloarthritis while being a Canadian living in Taiwan.

1
Walking Stronger Together: A Conversation with Jennifer Visscher about Walk Your AS Off with Jennifer 41:06

4M ago41:06

41:06

Jennifer Visscher, Founder of the annual Walk Your AS Off event discusses her journey with spondyloarthritis, her advocacy and awareness efforts, and transitioning the Walk Your AS Off event to SAA’s stewardship. www.walkyourasoff.com

1
Animal-assisted Interventions for Physical and Mental Health Wellness with Dr. Chastain 25:35

4M ago25:35

25:35

Dr. Taylor Chastain Griffin, National Director of AAI Advancement for Pet Partners, discusses the connection between animal-assisted interventions and mental and physical health benefits for people living with SpA. www.petpartners.org www.aaaiponline.org

1
Your Stories: Sarah Louden’s Journey with Sarah 42:18

4M ago42:18

42:18

Sarah Louden discusses her journey with spondyloarthritis and how she strives to live her best life as an entrepreneur, mother, and wife while living with axSpA.

1
Targeted Therapies and Earlier Diagnosis: Exploring Potential SpA Breakthroughs with Dr. Paley 33:51

5M ago33:51

33:51

Ocular rheumatologist Dr. Michael Paley M.D. Ph.D., SAA’s 2023 Early Career Investigator Award Winner, discusses his research. https://spondylitis.org/early-career-investigators-award/

1
Fatigue and Brain Fog with Dr. Korte 43:09

5M ago43:09

43:09

Simon Korte, PhD, neuroscientist, and SpA Warrior, discusses fatigue, brain fog, and its relation to spondyloarthritis.

1
Your Stories: Conversations with a Physical Trainer Living with SpA 39:48

5M ago39:48

39:48

John Frazier, physical trainer and author of the book Through the Pain, discusses his journey with AS and how it has impacted his own physical fitness and his work with others. Link to book: Through the Pain by John Frazier https://a.co/d/2T9YetV

1
Mindful Journaling for Chronic Pain with Amy 42:49

6M ago42:49

42:49

Amy Muscoplat, Writing Teacher, Creative Facilitator & Owner of Joyfestivalindustries.com, discusses how to use mindful journaling and expressive writing to manage chronic pain. www.Joyfestivalindustries.com

1
Step Therapy: Navigating the Challenges of Step Therapy for Better Access to Treatment for Patients with SpA 31:34

6M ago31:34

31:34

Dr. Christina Downey, rheumatologist, and Chair of the Government Affairs Committee for the American College of Rheumatology, explains step therapy, its challenges for SpA patients, and strategies to get the medications you need. https://spondylitis.org/advocacy/ www.steptherapy.com

1
Caring for the Caregivers with Dr. Wilde 52:46

6M ago52:46

52:46

Dr. Megan Wilde, Clinical Psychologist, discusses self-care, healthy boundaries, and support for caregivers and loved ones.

1
Ethnicity Differences in SpA with Dr. Gensler 37:43

6M ago37:43

37:43

Rheumatologist and Researcher Lianne Gensler, MD, discusses ethnicity, racial, and gender differences in spondyloarthritis.

1
Finding Community: The Benefits of Peer Support with Heidi Waltz 28:39

7M ago28:39

28:39

Heidi Waltz, patient advocate and SAA educational support group leader, discusses her journey with SpA and how she became involved in peer support groups. https://spondylitis.org/resources-support/support-resources/support-groups/

1
From Tragedy to Education and Advocacy: Advances in Airway Management with Bruce 36:52

7M ago36:52

36:52

Bruce Pierce, an advocate for the SpA community, discusses how his family turned a tragedy into an opportunity to educate first responders and anesthesiologists about the potential dangers of intubation for those with SpA. https://spondylitis.org/resources-support/educational-materials-resources/for-medical-professionals/for-anesthesiologists/ http…

1
Enteropathic Arthritis with Dr. Weisman 39:12

7M ago39:12

39:12

Michael Weisman, MD, FACP, rheumatologist, and SAA Medical & Scientific Advisory Board Member, discusses Enteropathic arthritis or arthritis with inflammatory bowel disease.

1
Dental Care and Spondyloarthritis with Dr. Gimbel 35:02

7M ago35:02

35:02

Dentist and SAA Board Member Craig Gimbel, DDS, discusses how spondyloarthritis may impact your dental health and visits with your dentist.

1
Parenting with Chronic Illness with Dr. Lomax 50:09

7M ago50:09

50:09

Dr. Jana Bolduan Lomax, Licensed Clinical Psychologist, and specialist in Health Psychology, discusses parenting with a chronic illness, the challenges faced and some strategies too.

1
Spondycast Year in Review: Highlights from 2023 31:47

8M ago31:47

31:47

Host Jill Miller shares highlights from the first year of Spondycast.

1
Living Beyond Diagnosis: The Practice of Being Grateful with Kristi Nelson 45:56

8M ago45:56

45:56

Kristi Nelson, the author of “Wake Up Grateful,” talks about the practice of gratefulness while living with a chronic health condition.

1
Benefits of Yoga with Larry Payne PhD 38:18

8M ago38:18

38:18

Internationally respected yoga teacher and author, Larry Payne, PhD, discusses the positive impact that yoga has on managing SpA. www.samata.com https://www.samata.com/how-to-stay-young-at-any-age https://spondylitis.org/product/back-in-action-again/

1
Biologic and Biosimilar Medications: Part 2 with Dr. Joerg Ermann 17:33

9M ago17:33

17:33

Rheumatologist Joerg Ermann, MD, discusses biosimilars and how they are similar to biologics in the treatment of spondyloarthritis.

1
Biologic and Biosimilar Medications: Part 1 with Dr. Joerg Ermann 26:53

9M ago26:53

26:53

Rheumatologist Joerg Ermann, MD, discusses biologics in the treatment of spondyloarthritis.

1
Psoriatic Arthritis: The Latest in Treatment and Research with Dr. Mease 45:31

9M ago45:31

45:31

Philip Mease, MD, Rheumatologist and Researcher, discusses psoriatic arthritis including the latest in treatment and research.

1
Medications: The Role of NSAIDs in Treating SpA with Dr. Le 24:41

9M ago24:41

24:41

Dr. Le discusses the role of NSAIDs in treating spondyloarthritis including their benefits and potential risks.

1
Chronic Pain Reset with Dr. Afton Hassett 39:24

10M ago39:24

39:24

Afton Hassett, PsyD, author of “Chronic Pain Reset” and Licensed Clinical Psychologist and Pain Researcher, discusses the science behind pain and the activities, skills, and practices that can help improve how you experience chronic pain to help you thrive.

1
Understanding CoPay Accumulators with Rachel Klein 39:52

10M ago39:52

39:52

Policy advocate and health policy expert Rachel Klein discusses copay accumulators and how they impact your ability to afford medications.www.spondylitis.org/advocacywww.allcopayscount.org

1
Physical Fitness and Spondyloarthritis with Alex Levine 36:56

10M ago36:56

36:56

Alex Levine, personal trainer and fitness nutrition specialist, talks about his personal journey with spondylitis and how to build a fitness and movement routine that works for you.https://www.alexlevinefitness.com/

1
Relationships and Spondyloarthritis: A Couple’s Journey with Kristin and Casey 46:22

10M ago46:22

46:22

With firsthand experience, Kristin and Casey Cornelius discuss maintaining a loving relationship while navigating the challenges of spondyloarthritis.

1
The Role of DMARDs in Treating SpA with Dr. Tran 40:29

11M ago40:29

40:29

Dr. Huynh Wynn Tran, a rheumatologist and assistant professor of pharmacy, discusses the role of DMARDs in treating spondyloarthritis including their benefits and risks.

1
Exploring the Feldenkrais Method for Spondyloarthritis with Dr. Barrows 48:52

11M ago48:52

48:52

Doctor of Physical Therapy and certified Feldenkrais practitioner Stacy Barrows teaches listeners about the Feldenkrais Method and how it can help listeners improve their mobility and reduce pain. https://feldenkrais.com/ Additional links: Smartroller: https://www.smartroller.net Upcoming talk for therapists; since it is on Zoom available to therap…

1
Cardiovascular Health and Spondyloarthritis with Dr. Lihi Eder 37:33

11M ago37:33

37:33

Dr. Lihi Eder, a rheumatologist and researcher with a focus on cardiovascular diseases in patients with rheumatic diseases, discusses cardiovascular health as it relates to spondyloarthritis.

1
Quitting Smoking with Spondyloarthritis with Carol Southard 35:20

11M ago35:20

35:20

Carol Southard, RN, MSN, certified smoking cessation instructor, discusses the importance of quitting smoking when you have spondyloarthritis and discusses strategies to live a smoke-free life.

1
Managing Stress While Living with Spondyloarthritis with Dr. Jana Boulduan-Lomax 46:36

11M ago46:36

46:36

Dr. Jana Boulduan-Lomax, a Clinical Psychologist specializing in Health Psychology, discusses managing stress while living with spondyloarthritis to empower listeners.

1
Protecting Your Job: Regain Your Power in the Workplace While Living with Spondyloarthritis with Rosalind Joffe 37:07

12M ago37:07

37:07

Rosalind Joffe, the “Chronic Illness Career Coach,” discusses how people impacted by spondyloarthritis can navigate workplace challenges and advocate for their needs. https://cicoach.com/ Chronic illness, workplace, work, employment, invisible disease, disclosure, diversity, inclusion, disability, accommodations, ADA…

1
Juvenile Spondyloarthritis and School Accommodations with Mary Ann Poladian 25:04

12M ago25:04

25:04

Mary Ann Poladian, a college counselor, and a parent of children with JSpA, discusses how school accommodations can help kids with JSpA be successful in school.

1
Pharmacological Cannabis Use for the Management of Spondyloarthritis with Dr. Veena Ranganath 38:09

12M ago38:09

38:09

Rheumatologist Veena Ranganath, MD, will discuss pharmacological cannabis for the management of spondyloarthritis.

1
The Impact of Spondyloarthritis on Intimacy and Relationships with Iris Zink 53:31

1y ago53:31

53:31

Iris Zink, Rheumatology Nurse Practitioner and Author of Sex Interrupted: Igniting Intimacy while Living with Illness or Disability, discusses how SpA impacts intimacy and relationships and provides strategies to navigate this journey.

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