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Contenido proporcionado por Karger Publishers. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Karger Publishers o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
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Karger - The Waiting Room
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Contenido proporcionado por Karger Publishers. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Karger Publishers o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
Whether you are suffering from a certain disease or generally interested in medical research and healthcare, The Waiting Room is a trustworthy resource of medical knowledge. At Karger, we have a tradition of medical publishing of over 130 years, working with experts across many different specialities. For our podcast and too our blog thewaitingroom.karger.com, we collaborate with both specialists and medical journalists to provide you with accurate, reliable and easy-to-understand information about health issues in a broad set of areas.
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42 episodios
Marcar todo como (no) reproducido ...
Manage series 3558520
Contenido proporcionado por Karger Publishers. Todo el contenido del podcast, incluidos episodios, gráficos y descripciones de podcast, lo carga y proporciona directamente Karger Publishers o su socio de plataforma de podcast. Si cree que alguien está utilizando su trabajo protegido por derechos de autor sin su permiso, puede seguir el proceso descrito aquí https://es.player.fm/legal.
Whether you are suffering from a certain disease or generally interested in medical research and healthcare, The Waiting Room is a trustworthy resource of medical knowledge. At Karger, we have a tradition of medical publishing of over 130 years, working with experts across many different specialities. For our podcast and too our blog thewaitingroom.karger.com, we collaborate with both specialists and medical journalists to provide you with accurate, reliable and easy-to-understand information about health issues in a broad set of areas.
…
continue reading
42 episodios
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1 S5 E3 – “You Are not Alone” – World Diabetes Day 2024 (November 14) with Konstantina Boumaki 24:52
For this episode of Karger’s The Waiting Room Podcast, we spoke with Konstantina Boumaki. She is a medical doctor with 19 years of experience in patient advocacy. Since her diagnosis with type 1 diabetes in 2005, she has been a passionate advocate, leading numerous projects to improve patient engagement and health outcomes. With regard to this year’s World Diabetes Day we talked about her patient journey and her work as a patient advocate. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Abby Match. She was diagnosed with triple-negative breast cancer at the age of 35 in 2020. After the diagnosis she became a breast cancer advocate as well as a board member of the US-based non-profit organization Living Beyond Breast Cancer in 2023. We spoke about her patient journey with breast cancer, her work as a patient advocate as well as Breast Cancer Awareness Month in October. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…

1 S5 E1 – “Nobody Knows Your Condition Better Than You”: Blood Cancer Awareness Month 2024 with Alastair Boyle 38:43
For the first episode of season 5 of Karger’s The Waiting Room Podcast, we spoke with Alastair Boyle. He was diagnosed with myelodysplasia, a type of blood cancer, in 2008 and eventually had to retire from his work as a firefighter in 2014. Ally then focused on patient and public involvement and providing input to charities, research studies and committees, for example, by serving as a Trustee for Blood Cancer UK . We spoke about his experiences with blood cancer, his work as a patient advocate and trustee as well as Blood Cancer Awareness Month in September. If you are looking for more detailed information on the signs and symptoms of blood cancer, follow this link to the section of the Blood Cancer UK website which discusses them and has a video talking about what to look out for. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…

1 S4 E10 – “The Importance of Early and Correct Diagnosis”: Sarcoma Awareness Month 2024 with Roger Wilson 33:46
For this episode of Karger’s The Waiting Room Podcast, we spoke with Roger Wilson. He is a sarcoma patient, patient advocate, founder of Sarcoma UK , as well as Honorary President and active Board member of the Sarcoma Patient Advocacy Global Network (SPAGN) . We talked about his patient journey with soft tissue sarcoma, his work as a patient advocate as well as Sarcoma Awareness Month in July, with this year’s motto being “The importance of early and correct diagnosis”. Since being diagnosed with a soft tissue sarcoma in 1999, Roger has undergone ten operations, chemotherapy and radiotherapy. He currently works with a range of organizations and academic research groups in the UK and Europe. Furthermore, he has honorary doctorates from the Universities of Sheffield and Lancaster in the UK.…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Mary Lynne Van Poelgeest-Pomfret. She is the President of the WFIPP , the World Federation of Incontinence and Pelvic Problems. We discussed incontinence/leakage and pelvic problems, the aspect of quality of life, stigma and mental health, as well as the upcoming World Continence Week , which is held from June 17–23, 2024. Lynne is also a long-time international patient advocate and a member of various scientific advisory committees and panels. Furthermore, she is a member of several patient advocacy movements and organizations such as IAPO (International Alliance of Patient Organizations) and EPF (European Patients’ Forum). Lynne has a BA degree from the UK and a Drs. degree from Leiden University in the Netherlands. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with cancer survivor and patient advocate Naniki Seboni about her experiences of being diagnosed with stage 3 malignant melanoma at the age of 25. We also discussed what should be done regarding prevention, screening and awareness of skin cancer – not only in her native country of South Africa, via the Cancer Association of South Africa (CANSA) , but also in the rest of the world. Please note that Skin Cancer Awareness Month is held in May each year. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Jessica Settle about her experience of being diagnosed with colorectal cancer at the age of 28. Jessica is the dedicated mother of a 12-year-old daughter. She is advocating for colon cancer awareness and spreading hope wherever she goes. Please note that Colorectal Cancer Awareness Month is held in March each year. Published in February 2024, Karger’s latest patients’ resource on colorectal cancer is freely available here . For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…

1 S4 E6 – Rare Diseases and AI/Digital Technologies with Emily Lewis (Digital Transformation Project Lead) 26:12
For this episode of Karger’s The Waiting Room Podcast, we spoke with Emily Lewis about Rare Disease Day on February 29, and how artificial intelligence (AI) and digital technologies could help patients living with a rare disease. Emily (Kunka) Lewis, MS, CCRP, CHES is an opinion leader in the digital transformation of healthcare. She is driven by a desire for the democratization of modern medicine. Emily received a Master of Science in Clinical Research from Northwestern University. She is currently working as a Digital Transformation Project Lead at UCB. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Bernie Price about her patient journey, her experiences after a gynecological cancer and hysterectomy, as well as the healthcare system as such. Bernie is an endometrial cancer survivor. She is a Transformational Mindset and Life coach, Tai Chi instructor and athlete. Furthermore, she serves as an advocate for women going through menopause. The booklet “Fast Facts for Patients: Sexual and Reproductive Health After Gynaecological Cancer” mentioned in the podcast episode can be downloaded online free of charge. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…

1 S4 E4 – Revision of the EU’s Pharmaceutical Legislation with Claudia Louati (European Patients’ Forum) 22:06
For this episode of Karger’s The Waiting Room Podcast, we spoke with Claudia Louati about the revision of the EU’s pharmaceutical legislation. Claudia Louati joined the European Patients’ Forum (EPF) as Head of Policy in May 2023. She leads EPF’s policy and advocacy work and steers EPF’s engagement with EU and international stakeholders on key policy issues. Before joining EPF, she worked at the Europe Office of the U.S. Food and Drug Administration in Brussels, where she promoted EU–U.S. regulatory collaboration on medical products. Claudia holds two master’s degrees in European Affairs from SciencesPo Paris and the London School of Economics. For more podcast episodes from Karger visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Charlie Bethel about men’s mental health in the context of Movember . The awareness month focuses, among prostate cancer and testicular cancer, on mental health and suicide prevention. Charlie is the Chief Officer of the UK Men’s Sheds Association (UKMSA) whose mission is “Healthy and Happy Men”. He has studied Industrial Design at university and worked in the third sector for over 20 years before joining UKMSA in the summer of 2018. Focused on acquiring and developing resources for the organization, his tasks combine three of his passions: organizational growth, increasing wellbeing and his love of craft and design. This podcast mentions suicide and suicidal ideation, and some people might find it disturbing. If you feel you need support, please contact your local crisis center. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Dr José Cândido Caldeira Xavier-Júnior, who is a pathologist. Pathology is a kind of invisible field in medicine. It happens behind closed doors – in the laboratory and in the morgue. Mostly, pathologists are depicted as the ones who determine cause of death. However, this is only one side of the coin! A not so well-known fact is that pathologists are indispensable in helping clinicians to diagnose a condition and to decide on the best cure, especially in cancer. On the role of a pathologist, Dr José Cândido Caldeira Xavier-Júnior also wrote three blog posts for The Waiting Room blog which you find here: · The Role of a Pathologist in Diagnosis and Treatment: What Does a Pathologist Do in General? · The Role of a Pathologist in Diagnosis and Treatment: What Does a Pathology Report Contain? · The Role of a Pathologist in Diagnosis and Treatment: Pathology Is a Varied Medical Field For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Dr Erik Briers, MS PhD about current screening and testing modalities, as well as mental health and quality of life in connection with prostate cancer. Erik is both an Expert Patient Advocate, member of the European Association of Urology (EAU) prostate cancer guidelines committee and the Vice-Chair of the European Prostate Cancer Coalition, i.e. Europa Uomo – The Voice of Men with Prostate Cancer in Europe . He has a PhD in Chemistry from the University of Leuven, Belgium, and was CEO of a biotech company. His strong social involvement within patient organisations began after his own prostate cancer diagnosis in 2001. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts .…
For this episode of Karger’s The Waiting Room Podcast, we spoke with Elisa Martini and Helen Crawford from the International Federation of Psoriasis Associations (IFPA) about the skin condition psoriasis and the upcoming Psoriasis Action Month in August. Elisa Martini is the Policy and Advocacy Manager of the International Federation of Psoriasis Associations (IFPA) and is thus responsible for developing and implementing IFPA’s advocacy and policy strategies at a global level. She has a Master’s degree in pharmaceutical sciences and a Ph.D. with a focus on psoriasis. Helen Crawford is both a Board Member of the International Federation of Psoriasis Associations (IFPA) and Programs Manager at the Canadian Association of Psoriasis Patients . She is committed to patient engagement and has participated in several patient advisory boards. Furthermore, she has a degree in Linguistics from Carleton University and a Certificate in Social Media from Algonquin College. The IFPA works on behalf of 125 million people living with psoriasis and/or psoriatic arthritis. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts .…

1 S3 E7 – “For a Better Tomorrow”: An Interview with Nomsa Mtshali (Rare Diseases South Africa) 16:52
For this episode of Karger’s The Waiting Room Podcast, we spoke with Nomsa Mtshali, Patient Community and Rare Assist Manager at Rare Diseases South Africa . Rare Diseases South Africa is a non-profit organization which aims to assist rare disease patients in receiving access to life-saving treatment and supportive care for improved quality of life. The Rare Bear Project is a community upliftment program under Rare Diseases South Africa. For more podcast episodes from Karger please visit https://www.karger.com/pages/podcasts .…
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