Join us in our chat with Sarah Lotfi, the writer and director of the live action short film, Menschen. Menschen packs a lot of humanity into 30 minutes with the tag “Life Worthy of Life.” We, too, will try to pack a lot into 30 minutes as we hear more about Lotfi’s siblings, each with Down syndrome, her leading co-star Connor Long, and the many hum…

Allie Guard is 25 years old and has her own business! She creates beautiful art with colored pencils and bright colors. The pieces are then either framed, turned into wearable art, or stationary items. She has her own web store and Facebook page! We've been following Allie's works since we found her for our List.ly list of Businesses by adults who …

In Sherry's soon to be released book, "Life With Charley" she talks about the son she adopted when he was two months old. Charley, who is now 21, has an infectious smile and a following on his Mom's blog and Facebook page. He also has Down syndrome. Now Sherry tells her story via a memoir. Join us when we talk to Sherry about what it's like to writ…

"Our mission is to create opportunities for those who may need extra guidance and encouragement to learn to maintain and appreciate a healthy and active lifestyle." A recent article in The Washington Post "Spirit moves them: Fitness program is tailored to people with developmental disabilities" caught our attention. If you're interested in exercise…

Sarah will be starting high school in a few weeks. If that's not exciting enough, she also has her own cooking show, Sarah's Great Day! Sarah and her Mom, Valerie, recently held a workshop at the NDSC convention where she showed other teens and adults how to make their own guacamole. You can find lots of her videos on her YouTube Channel. We'll be …

"Buddy Up Tennis is a weekly, high-energy 90-minute program focused on adaptive tennis, fitness, and fun for children and adults with Down Syndrome." As parents of adults who have Down syndrome, we're always looking for ways to help our "kids" stay active and healthy. Join us as we learn about how this program works! Be sure to look for them in the…

Ethan Saylor died in police custody on January 12, 2013 in Frederick, Maryland as he was being arrested for trespassing in a movie theater because he wanted to see a second showing of "Zero Dark Thirty.". Ed Rhodes has been working diligently for months trying to "piece together the story of Ethan’s death and what needs change in order to help prev…

A representative from Ruby's Rainbow will be with us to talk about their program designed to "grant scholarships to adults with Down syndrome who are seeking post-secondary education, enrichment or vocational classes." They'll be presenting at the National Down Syndrome Congress convention in Indianapolis and we'll get a "sneak peak" at what they h…

We're excited to have Sujata Bardhan, Ph.D and Melissa Parisi, M.D., Ph.D. from the Eunice Shriver Kennedy National Institute for Child Health and Human Development (NICHD), National Institute of Health (NIH) visit us to talk about DS-Connect the online research and data portal that launched in September of last year. We'll find out where you can c…

Attorney and bioethisist Mark Leach will be talking to us about his upcoming presentation at the National Down Syndrome Congress Convention: "The New Era of Prenatal Testing: Answering Questions About the New Age of Genetics." If anyone knows the most current information on this topic it's Mark! Join us as we talk about his important work within th…

Getting ready for the NDSC conference in Indianapolis? We're talking to some of the presenters and exhibitors who will be focused on adult issues. Our first scheduled guest is Marianne Marts from Joey's Ups with Downs. Marianne is co-guardian of Joey, her older brother who has Down syndrome. She'll be talking about her presentation scheduled for Sa…

We'll continue Saturday's conversation about what we're looking forward to learning from the National Down Syndrome Congress convention and what we need from our new community focused on caring for adults who have Down syndorme. This is your turn to give us input on what features you'd like to see, topics you'd like to discuss, or resources you'd l…