Los mejores podcasts de Hypermobility (2024)

1
81 - My Hypermobility: New Children's Book on Hypermobility by Leah Pinnington 36:05

2M ago36:05

36:05

In this episode, Leah Pinnington discusses My Hypermobility, the children's book she wrote about her daughter's experience with hypermobility. Leah advocates for better awareness about hypermobility in schools and her book has been successful internationally.Links: Instagram: https://www.instagram.com/leahpinnington_author/My Hypermobility on Amazo…

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80 - Help! I'm Hypermobile Podcast Host and Hypermobility Specialist Osteopath Alexandra Orfanides 58:06

2M ago58:06

58:06

This episode features a discussion with Alex Orfanides, Masters in Osteopathy and Bachelor of Arts (honors), a hypermobility specialist osteopath and content creator who hosts the fantastic podcast Help! I’m Hypermobile. Alex has a unique blend of expertise gained through her prior degree in English literature and her clinical work with elite athle…

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79 - Too Flexible to Feel Good Co-Author Celest Pereira on Hypermobility, Chronic Pain & More 54:31

4M ago54:31

54:31

This episode features Celest Pereira who is a trained dancer, martial artist, co-author and physiotherapist. She earned her Bachelor of Science degree in Physiotherapy in 2009. Celest loves learning about and discussing anatomy, neuroscience and biomechanics and runs regular education-based workshops where she breaks down scientific research studie…

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78 - Allysa Seely: USA Paralympian Gold Medalist on Medical Gaslighting and Advocacy Work 52:19

4M ago52:19

52:19

Today our guest is paralympic Gold Medalist Allysa Seely. Allysa is a paratriathlon athlete with Ehlers-Danlos Syndrome and related conditions like Chiari II. Beyond her gold medal award, Allysa is also a three-time world paratriathlon champion and a 17-time ITU World Paratriathlon Event medalist with 12 golds, 3 silvers, and 2 bronzes. In 2016 at …

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77 - Movement Approaches, Nervous System Regulation & More (with Andy Hsieh, CPT-ACE) 53:30

4M ago53:30

53:30

On this episode, our guest is Andy Hsieh of Movement Reborn located in San Diego, CA. Andy is a certified personal trainer through the American Council of Exercise, as well as a specialist in neurokinetic training. Andy runs Movement Reborn, an in-person personal training practice that also has some helpful YouTube videos for those who are not in t…

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76 - Nervous System Regulation, Pelvic Health & More (Dr. Rita White DPT) 49:24

5M ago49:24

49:24

On this episode, we are joined by Dr. Rita White, Doctor of Physical Therapy. Rita is a pelvic health physical therapist with over 10 years of experience helping people reconnect to their body so they can overcome pain. Her areas of expertise include pelvic health and pain conditions, especially hypermobile Ehlers-Danlos Syndrome (hEDS)/ Hypermobil…

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75 - Whealth - Hypermobile Couple Katie Goss and Andrew Dettelbach 1:00:23

5M ago1:00:23

1:00:23

On this episode, hypermobile couple Katie Goss and Andrew Dettelbach discuss their experiences living with hypermobility as well as their insights from working with hypermobile people through their practice and the organization they founded: Whealth.Links:https://spreadwhealth.com/overcome-painhttps://www.instagram.com/whealthhttps://www.facebook.c…

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74 - Dr. Brian Cunningham, DPT (The Swim Doc) on Swimming & Hypermobility 1:17:17

5M ago1:17:17

1:17:17

In this episode, Dr. Brian Cunningham (The Swim Doc) talks about coaching and working with swimmers of all ages, strengths, and abilities (including hypermobile swimmers). Dr. Cunningham is an experienced physical therapist and swimmer who teaches swimmers about the specific muscles they need to engage as well as the habits and strategies of elite …

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73 - Occupational Therapist Jo Southall on Pacing, Patient Advocacy, Dark Age Medicine & More 49:43

1y ago49:43

49:43

On this episode, our guest is Jo Southall, Occupational Therapist and Patient Advocate. Jo is an Independent Occupational Therapist and an expert patient with many years of experience self-managing complex health conditions. Jo began working life in the sport and Outdoor Adventure industries. After being diagnosed with Hypermobile Ehlers Danlos Syn…

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72 - Remembering Stephanie Aston - with Punteha van Terheyden 38:13

1y ago38:13

38:13

On this episode, British-Iranian journalist Punteha van Terheyden discusses the recent tragic death of Stephanie Aston in New Zealand and the article Punteha wrote about Steph and Punteha’s own experiences with hypermobility and other medical conditions.Punteha van Terheyden - https://www.vtfeatures.co.uk/'Stephanie Aston died after doctors said sh…

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71 - Hormones, Pelvic Floor and Hypermobility: Dr. Brit Harmon (PT) 42:41

1+ y ago42:41

42:41

On this episode, our guest is Dr. Brit Harmon, a Doctor of Physical Therapy who specializes in hypermobility and women’s health. Dr. Brit works to help women to feel more empowered in their ability to create sustainable and obtainable shifts in their bodies and minds. Her background in Hypermobility, the female cycle, holistic health, and the pelvi…

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70 - Highly Sensitive People, Neurodivergency, ADHD & Advocacy: Donna Irene 1:00:07

1+ y ago1:00:07

1:00:07

On this episode, Donna Irene talks about her experience with hypermobile Ehlers-Danlos Syndrome and related conditions. Donna is a travel photographer with hEDS from Miami, FL and soon to be in Chattanooga, Tennessee. She picked up a camera at the age of 13 and since then her camera has taken her to 5 continents and 40 countries. Since her diagnosi…

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69 - Donna Sullivan (TCAPP) - Supporting Children and Families Impacted by EDS, Hypermobility & More 1:10:29

1+ y ago1:10:29

1:10:29

Content advisory: This episode contains discussion of highly sensitive topics including suicide and allegations of child abuse. Please exercise listener discretion.On this episode, Kerry interviews Donna Sullivan, a patient advocate with the organization TCAPP, The Coalition Against Pediatric Pain. She is a graduate of Providence College and has wo…

1
68 - Mitch Martow Update on Advocacy & More 48:26

1+ y ago48:26

48:26

Mitch Martow returns to the Hypermobility Happy Hour to talk about his documentary and advocacy efforts.LinksBend or Break documentary https://youtu.be/5toRNvFug3YInstagram (@mitchmartow)https://instagram.com/mitchmartow?igshid=MTIyMzRjYmRlZg==Bend or Break Instagram (@_bend_or_break_)https://instagram.com/_bend_or_break_?igshid=MTIyMzRjYmRlZg==htt…

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67 - Kalin Johnson (Part 2) Advocacy, Neurodivergency & More 38:27

1+ y ago38:27

38:27

On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best thr…

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66 - Kalin Johnson on Advocacy, Neurodivergency & More 41:42

1+ y ago41:42

41:42

On this episode, Kalin Johnson, a healthcare provider, patient advocate and entrepreneur, discusses her path to connecting the dots of Hypermobility and neurodivergency in her own life and building a patient advocacy practice. Kalin shows high-achieving, neurodivergent, & hypermobile individuals how to “unmask their health,” and feel their best thr…

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65 - Taylor Goldberg on Hypermobility 1:06:46

1+ y ago1:06:46

1:06:46

In this episode, Taylor Goldberg, DC, discusses her practice as a hypermobility coach and her perspectives on various aspects of hypermobility spectrum conditions. Taylor is a chiropractor who works with hypermobile individuals and has a unique perspective through her education and her own experiences with hypermobility. www.hypermobilechiro.comIns…

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64 - Savita Sandhu on Diet and Hypermobility (Part 2) POTS & Diet 51:12

1+ y ago51:12

51:12

On this episode, returning guest Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses diet, POTS, and hypermobility. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional and Enviro…

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63 - Dr. Alysse Cruz on Diagnosing and Treating Hypermobility from Ages 5-80 52:06

2y ago52:06

52:06

On this episode, Dr. Alysse Cruz, who goes by @zebracornmd on Instagram, discusses the diagnostic process for Hypermobility and more. Dr. Cruz is a multiracial, first generation, board-certified family medicine doctor with myopathic Ehlers-Danlos Syndrome (EDS) and POTS and a passion for teaching. She obtained her degree from The Ohio State Univers…

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62 - Camille Schrier on Advocacy, Awareness & More 1:05:49

2y ago1:05:49

1:05:49

On this episode, Camille Schrier returns to talk about her life as a pharmacy student and her continuing advocacy efforts regarding Ehlers-Danlos Syndrome. Camille graduated with honors from Virginia Tech in 2018 with dual Bachelor of Science degrees in Biochemistry and Systems Biology. She is currently pursuing a Doctor of Pharmacy degree at Virgi…

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61 - Dr. Melissa Koehl (PT) on Treating the Full Spectrum of Hypermobility 1:12:29

2y ago1:12:29

1:12:29

On this episode, Kerry interviews Dr. Melissa Koehl, a physical therapist diagnosed with hypermobile Ehlers-Danlos Syndrome. Dr. Melissa was a competitive level 10 gymnast in her earlier years and ended up incurring a number of injuries including a career-ending stress fracture to her lower back. Dr. Melissa created her own ChimeraFit method that c…

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60 - Zinc & Hypermobility: Fiona Sullivan & Danielle Humphreys 1:33:35

2y ago1:33:35

1:33:35

Content notice: This episode contains discussion of premature death and descriptions of physical symptoms and medical procedures/conditionsThis podcast is for informational and educational purposes only. Please consult with appropriate medical professionals before making any changes to your own health regimen.On this episode, researchers Fiona Sull…

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59 - Doug Kremer on Learning about and Treating Hypermobility Later in Life and hEDS in Men 49:40

2y ago49:40

49:40

On this episode, Kerry interviews Doug Kremer, a mechanical engineer diagnosed with hEDS in late 2021. He’s the father of two girls, one who is 17 and has mild features of hypermobility and another daughter who is 19 and was diagnosed with hEDS in mid-2021. Doug reached out after finding success with one of the treatments we discussed on this show …

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58 - Hyp-ACCESS: L Tuthall and Audre Wirtanen on Reimagining Hypermobility 1:03:16

2y ago1:03:16

1:03:16

Content Warning: This episode contains mentions of suicidality, ableism, abuse, exploitation, medical trauma, white supremacy, eugenics. Please exercise listener discretion.On this episode, Kerry interviews L Tuthall (they, them) and Audre Wirtanen (she, her)--two disabled community organizers, care access advocates, artists, and researchers who co…

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57 - Victoria Daylor: From Dancer to Pre-Med with hEDS 54:44

2y ago54:44

54:44

Victoria was a professional dancer and Gyrotonic Instructor who has performed throughout the US and worldwide including in Israel, Greece, and a tour in Austria. After being diagnosed with hypermobile Ehlers-Danlos Syndrome, Victoria switched gears and is now a Postbac student at Columbia University in New York City where she is pre-med and prepari…

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56 - Savita Sandhu (Savvy Dietetics) on Diet and Hypermobility (Part 1) Mast Cells & Diet 58:20

2y ago58:20

58:20

On today’s episode, Savita Sandhu from Savvy Dietetics located in Brisbane, Australia discusses the relationship between hypermobility and our diets. Savita received her Bachelor Degree in Nutrition and Dietetics with Honours at the Queensland University of Technology and underwent postgraduate training with the Australasian College of Nutritional …

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55 - Dr. Pradeep Chopra: On Headaches in EDS and their Various Causes (Part 3) 29:00

2y ago29:00

29:00

This episode is Part 3 in a series of interviews with Dr. Pradeep Chopra. This episode focuses on the types of headaches experienced by people with EDS and hypermobility and how those headaches can be diagnosed and treated.Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management,…

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53 - Dr. Angelina Vera on Hips, Hypermobile Genetics, and More 56:37

2y ago56:37

56:37

On this episode, Kerry interviews Dr. Angelina Vera, a fellowship trained orthopedic surgeon who specializes in sports medicine, arthroscopy, and the treatment of injuries to the shoulder, hip, knee, and ankle. Her practice is located in the Las Vegas, Summerlin, and Henderson areas of Nevada. She has a particular interest in hip pathology, anatomi…

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52- John Ferman of EDS Awareness: EDS is Not All in the Head 33:12

2y ago33:12

33:12

On this episode, John Ferman returns to talk about his recent work with his organization EDS Awareness/Chronic Pain Partners. EDS Awareness/Chronic Pain Partners has tons of great content including free online webinars that are posted to YouTube (one of which has an astounding 50,000 views) so definitely check them out if you haven’t already and ar…

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51 - Christie Cox - Her Advocacy Practice & New Book Holding it All Together When You're Hypermobile 1:18:49

2y ago1:18:49

1:18:49

Christie Cox is a patient advocate who was diagnosed with hypermobile Ehlers-Danlos Syndrome after a 17 year quest to find answers. Christie just published a fascinating book called Holding it All Together When You’re Hypermobile: Achieving a Better Life Experience with EDS, POTS, & Joint Instability and she has a patient advocacy practice that off…

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50 - Dr. Pradeep Chopra (Part 2) POTS, MCAS and More 1:35:00

2+ y ago1:35:00

1:35:00

Part 2 in our series of interviews with Dr. Pradeep Chopra, renowned specialist in treating pain and the various co-morbidities and symptoms that occur in people with Ehlers-Danlos Syndrome and other conditions involving chronic pain. This episode centers on mast cell activation syndrome (MCAS) and postural orthostatic tachycardia syndrome (POTS).w…

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49 - Hannah Ensor (UK) on the HMSA, Stickman Communications, and More 1:45:31

2+ y ago1:45:31

1:45:31

On this episode, Kerry interviews Hannah Ensor regarding her work with the Hypermobility Syndromes Association (the HMSA) and Stickman Communications. Hannah is based in the United Kingdom and she worked in the field of Environmental Health for five years before being medically retired at age 28 due to a hypermobility spectrum disorder and postural…

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48 - Mitch Martow: Bend or Break Documentary and Life with EDS 1:07:19

2+ y ago1:07:19

1:07:19

Trigger Warning: This episode contains discussion of suicidal thoughts and suicide. Please exercise listener discretion and if this episode isn't for you for any reason or if you are listening with children, please skip it, we've got some great new episodes coming out soon. If you are struggling with suicidal thoughts, please seek assistance. You a…

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47 - Dr. Jeffrey Boris on Two Decades of Treating POTS and Related Conditions 1:36:54

2+ y ago1:36:54

1:36:54

On this episode, Dr. Jeffrey Boris, a board-certified pediatric cardiologist and general pediatrician talks about his experience caring for patients with POTS since 2002. He has worked with patients who have multiple other diagnoses alongside their POTS, including joint hypermobility with or without Ehlers-Danlos syndrome, concussions, mast cell ac…

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46 - Dr. Pradeep Chopra: Overview on EDS and Pain (Part 1) 57:32

2+ y ago57:32

57:32

On this episode (part 1 in a series), Kerry interviews Dr. Pradeep Chopra who gives an overview regarding treatment of Ehlers-Danlos Syndromes and pain. Dr. Chopra completed an anesthesia residency at Harvard Medical School and went on to complete a fellowship in Pain Management, also from Harvard. Dr. Chopra is double board certified in Pain Manag…

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45 - Isobel Knight (UK) on Decades of Work Studying and Writing Books on Hypermobility 1:13:47

2+ y ago1:13:47

1:13:47

On this episode, Kerry interviews Isobel Knight, a writer, researcher and lecturer on hypermobile Ehlers Danlos Syndrome. She was also a practitioner of the Bowen technique--a gentle form of soft tissue therapy from Australia for 17 years. Isobel unfortunately medically retired in 2017.. Isobel is the author of 'A Multidisciplinary Approach to Mana…

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44 - Emily Rich OT on Occupational Therapy for EDS/POTS 1:01:13

2+ y ago1:01:13

1:01:13

In this episode, Emily Rich, OT discusses her practice as an occupational therapist working with patients with EDS, hypermobility conditions, and co-morbidities like POTS. Emily is a practicing occupational therapist, Ph.D. student, and researcher. Her interests lie in chronic conditions (including POTS, EDS, and related hypermobility conditions) a…

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43 - Libby Hinsley on her New Book on Yoga and Hypermobility 51:57

2+ y ago51:57

51:57

On this episode, Libby Hinsley (physical therapist, yoga therapist, and long time yoga teacher diagnosed with hypermobile EDS) discusses her practice working with hypermobile patients and chronic pain conditions as well as her new book called Yoga for Bendy People: Optimizing the Benefits of Yoga for Hypermobility. The e-book will be released in Ma…

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42 - Kate Skinner, PT, Discusses Her Practice and Perspective 1:01:38

2+ y ago1:01:38

1:01:38

On this episode, Kate Skinner PT discusses her physical therapy practice and her unique perspective as a patient with EDS. Kate has a Doctorate in Physical Therapy and she currently practices as a physical therapist who specializes in the treatment of chronic pain and hypermobility. She has a number of online resources available like her Hypermobil…

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Talking Community Engagement with Karina Sturm | Finding Your Range Podcast S2:E12 35:29

2+ y ago35:29

35:29

Please join me in welcoming Karina Sturm to Finding Your Range podcast. Karina is a multi-media journalist and filmmaker from Germany who lived in the US for seven years. She gained significant scientific knowledge through studying laboratory technology and working in research for several years. Due to a chronic illness and invisible disability, sh…

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EDS Patient Advocacy | Finding Your Range Podcast S2:E11 1:00:31

2+ y ago1:00:31

1:00:31

We often find it hard to advocate for ourselves. I’m delighted to be joined this week by a leading expert of patient advocacy. Please join me in welcoming Maggie Buckley to Finding Your Range. Maggie Buckley, MBA, BCPA, has been a Health and Patient advocate for more than 25 years while living with the chronic pain condition Ehlers-Danlos Syndrome.…

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41 - Lilian Holm (@hypermobilitydoctor) Discusses Her Comprehensive and Unique Model of EDS Care 52:53

2+ y ago52:53

52:53

On this episode, Kerry interviews Lilian Holm (Doctor of Physical Therapy) about her practice which focuses on the treatment of patients with hypermobility conditions including Ehlers-Danlos Syndrome using physical therapy. Dr. Holm utilizes a comprehensive, unique model of care which includes extended private treatment sessions and shares her pers…

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Talking Occupational Therapy for Hypermobility | Finding Your Range Podcast S2:E9 50:06

2+ y ago50:06

50:06

I’m excited to speak with Jo Southall in this episode of Finding Your Range. Jo is an Independent Occupational Therapist and expert patient with many years of experience self-managing complex health conditions. She lives with Hypermobile EDS, Postural Tachycardia and Visual Stress. Her own lived experiences combined with OT theory form the basis fo…

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40 - Research on EDS in Animals: Dr. Heather Gray-Edwards and Dr. Abby McElroy 36:18

2+ y ago36:18

36:18

On this episode, we have returning guest Dr. Abby McElroy who previously was a guest on the Hypermobility Happy Hour discussing EDS in animals. Today, she returns with her principal investigator Dr. Heather Gray-Edwards to discuss the exciting new research they have been working on. Dr. Gray-Edwards is an assistant professor of Radiology at the Uni…

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Talking Nutrition and Hypermobility with Lorna Ryan | Finding Your Range Podcast S2:E9 35:28

2+ y ago35:28

35:28

This week I am joined by Lorna Ryan. Lorna Ryan is a registered Nutritionist/Nutritional Therapy and Lifestyle Medicine Practitioner specialising in supporting those with Hypermobility (hEDS/HSD). She has particular interest in gastrointestinal manifestations & autonomic involvement, an interest directed from her personal backstory of living with h…

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39 - Dr. Megan Barker (@hypermobilityhealthcoach) and her Physical Therapy/Health Coaching Practice 1:03:45

2+ y ago1:03:45

1:03:45

On this episode, Dr. Megan Barker of Rhythm Health, LLC discusses her practice treating patients with EDS and HSD using physical therapy and health coaching. Dr. Barker has a Doctor of Physical Therapy degree from The George Washington University where she is a current member of the adjunct faculty at the university’s Doctor of Physical Therapy Pro…

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Living with Autism and EDS | Finding Your Range Podcast S2:E7 1:03:00

3y ago1:03:00

1:03:00

In this episode of Finding Your Range, we talk to Jane Green. In June 2018 Jane founded SEDS to increase local specialised support and improve awareness, knowledge and understanding of EDS/HSD and co-occurring conditions plus advocate in key areas of health, social care, education and transport accessibility locally. Previously, she taught at St P…

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38 - Ryann Mason (chronically_ry), Nurse, Advocate, and Miss Wheelchair Virginia 2020-2021 1:19:45

3y ago1:19:45

1:19:45

On this episode, Kerry interviews Ryann Mason. Ryann is a nurse, advocate, sex educator, athlete, activist, and Ehlers-Danlos syndrome patient known on instagram as chronically_ry who is involved in a number of projects, many of which involve spreading awareness about the need for increased visibility for disabled persons and better accessibility i…

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Talking Pregnancy and EDS | Finding Your Range Podcast S2:E6 1:12:40

3y ago1:12:40

1:12:40

In this unique episode of Finding Your Range podcast we here from a panel of prenatal and postnatal members of the hypermobile community. We discuss what issues and experiences they have had with getting pregnant, being pregnant and moving into postnatal. We know that female hormones play a huge role in hypermobility symptoms and pain. We explore t…

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Talking How To Manage The Menopause, With Dinah Simon | Finding Your Range Podcast S2:E5 49:43

3y ago49:43

49:43

In this episode of Finding Your Range podcast, we hear from Dinah Simon – a Pilates teacher with a specialist interest in the menopause. I chat to her about the impact the menopause can have on women and how this can relate to EDS symptoms. A fascinating listen – I learnt a lot. Here’s an intro from Dinah: Teaching movement has been my passion for …

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