¡Desconecta con la aplicación Player FM !
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Manage episode 411287998 series 2030599
In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration.
Also in this episode:
- Sean travels to Vegas with a group of 30.
- Newsworthy: Viral ad challenges stereotypes about Down syndrome: ‘Assume I can drink a margarita’
- Thank you notes: Jakob in Austria and Kelly at The Venetian.
Links and resources:
287 episodios
Manage episode 411287998 series 2030599
In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration.
Also in this episode:
- Sean travels to Vegas with a group of 30.
- Newsworthy: Viral ad challenges stereotypes about Down syndrome: ‘Assume I can drink a margarita’
- Thank you notes: Jakob in Austria and Kelly at The Venetian.
Links and resources:
287 episodios
Todos los episodios
×Bienvenido a Player FM!
Player FM está escaneando la web en busca de podcasts de alta calidad para que los disfrutes en este momento. Es la mejor aplicación de podcast y funciona en Android, iPhone y la web. Regístrate para sincronizar suscripciones a través de dispositivos.